Experiences of Next-of-Kin to Foreign-Born Dying Patients Cared for in Specialist Palliative Care

A Qualitative Study

Bibliographic Data

ID13629084
AuthorsMaria Carlsson (0000-0002-1317-8524, Uppsala University, corresponding author), Katarina Hjelm (0000-0002-9096-9119, Uppsala University)
Year2023
Volume92
Issue4
Pages2184-2203
Publication date2023-12-21
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/00302228231224000
PMID38128114
OpenAlexW4390043194
LanguageEN
Citations received1
References cited21

Earlier studies have shown that healthcare personnel in specialized palliative care see patients with migrant backgrounds as others and that they, as providers, are unable to provide culturally competent care. Thus, these studies indicate a taken for granted perception, instead of knowledge based on experiences or scientific knowledge. The objectives of this study were to explore preferences, expectations on and experiences of specialist palliative care from next-of-kin of migrants of different origin. This study used a qualitative methodology, and the data were analyzed with systematic text condensation. The interviews were based on semi-structured interviews with seven next-of-kin. Four code groups represented the next-of kin's experiences: The wishes and needs of the foreign-born person in a palliative phase form the care; The families' prerequisites for, and the impact of, palliative informal caregiving; The staff working in accordance with a palliative care approach; Palliative care in a seamless care chain

Health care · Next of kin · Palliative care · Perception · Political science · Qualitative research · Sociology · Family Support in Illness · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology

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Open DOIOpen Access