Awareness, Acceptance, Avoidance
Home Care Aides’ Approaches to Death and End-of-Life Care
Bibliographic Data
| ID | 13629290 |
|---|---|
| Authors | Emma K Tsui (0000-0001-8944-6129, CUNY Graduate School of Public Health and Health Policy, corresponding author), Jennifer M Reckrey (0000-0001-8904-8200, Icahn School of Medicine at Mount Sinai), Emily Franzosa (0000-0002-7590-0316, Icahn School of Medicine at Mount Sinai), Marita LaMonica (CUNY Graduate School of Public Health and Health Policy), Seedoumuktar Gassama (CUNY Graduate School of Public Health and Health Policy), Kathrin Boerner (0000-0002-6591-9371, University of Massachusetts Boston) |
| Year | 2022 |
| Volume | 89 |
| Issue | 2 |
| Pages | 550-566 |
| Publication date | 2022-03-04 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/00302228221078348 |
| PMID | 35245148 |
| OpenAlex | W4220728956 |
| Language | EN |
| References cited | 24 |
Death and dying are woven throughout the work of home care aides, and yet the care they provide at the end of life (EOL) remains poorly understood. This is due in part to the multiple circumstances under which aides provide EOL care. In this paper, we elucidate the EOL care experiences of aides working in home care agencies in New York City. We conducted in-depth interviews with 29 home care aides, and we analyzed these data using inductive, team-based methods. Our findings show that aides may not be aware of or accept a client's EOL status, and they may avoid EOL care. These conditions shape EOL care, and we detail the committed forms of care aides provide when they are aware and accepting. We recommend improved training, support systems, and policy change to enhance aides' contributions to EOL care, while protecting aides' health and well-being
End-of-life care · Health care · Palliative care · Political science · Terminal care · Work (physics · Engineering · Geriatric Care and Nursing Homes · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology
Using the framework method for the analysis of qualitative data in multi-disciplinary health research
The Caring Self
The Managed Heart
We Take Care of People; What Happens to Us Afterwards?”
Caregiving in a Patient’s Place of Residence
Naturalistic inquiry
Home Care Workers' Experiences of Client Death and Disenfranchised Grief
Senses of care
From Servitude to Service Work
| Citation velocity | historical |
|---|---|
| Highly cited | No |