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Truth-Telling to Terminal Stage Cancer Patients in India

A Study of the General Denial to Disclosure

Bibliographic Data

ID13629412
AuthorsSouvik Mondal (0000-0001-5531-9105, Department of Sociology, Presidency University, Kolkata, India, corresponding author)
Year2021
Volume87
Issue3
Pages941-961
Publication date2021-07-18
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/00302228211032732
PMID34275387
OpenAlexW3183400289
LanguageEN
Citations received1
References cited34

Telling the truth to the terminal-stage cancer patients differs socio-culturally based on the priorities assigned to patients' autonomy and the principles of beneficence and non-maleficence. After conducting in-depth interviews with 108 terminal-stage adult cancer patients, 306 family members, and 25 physicians, in private and public hospitals in both rural and urban areas, in the state of West Bengal, India it has been found that even though 85.60% of the patients prefer full disclosure, only 22.03% are actually informed. Though demographic characteristics, like age, gender, education etc., have marginal influences over the pattern of truth-telling, the main factor behind non-disclosure is the family members' preference for principles of beneficence and non-maleficence over patient autonomy. Hence, only 9.32% of those 118 patients' family members have agreed to full disclosure. Physicians comply with this culture of non-disclosure as family, in India, is the centre of decision-making and acts as the primary unit of care

Alternative medicine · Autonomy · Beneficence · Denial · Economic Justice · Family medicine · Informed consent · Paternalism · Pathology · Political science · Law · Medicine · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Patient-Provider Communication in Healthcare · Psychology

  • Dying with shame

    Souvik Mondal•Mortality•2024

  • Marriage and family in India

    K M Kapadia•Marriage and family in India•1966

  • What to Tell Cancer Patients

    Donald Oken•JAMA•1961

  • Disclosure practices and cultural narratives

    Open Access•Deborah R Gordon, Enzo Paci et al.•Social Science & Medicine•1997

  • The Indian Family

    Radhamany Sooryamoorthy•Journal of Comparative Family…•2012

  • Families in India

    Leela Mullaiti•Journal of Comparative Family…•1995

Citations per year0.5
Citation span2024 - 2024 (1)
Highly citedNo

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