Caring for Children With Life-Limiting Illness in Bloemfontein, South Africa
Challenging the Assumptions of the ‘Good Death’
Bibliographic Data
| ID | 13630210 |
|---|---|
| Authors | Callie Daniels-Howell (0000-0003-3238-9375, Institute for Global Health,University College London, UK, corresponding author) |
| Year | 2020 |
| Volume | 85 |
| Issue | 2 |
| Pages | 317-344 |
| Publication date | 2020-07-23 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | OMEGA - Journal of Death and Dying (JOURNAL) |
| Journal identifiers | ISSN: 0030-2228 • E-ISSN: 1541-3764 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/0030222820944099 |
| PMID | 32703072 |
| OpenAlex | W3044873350 |
| Language | EN |
| Citations received | 1 |
| References cited | 46 |
Theories of good death focused on acceptance, control, and meaning-making inform adult palliative care in high-resource settings. As children's palliative and hospice care (CPHC) develops in resource-limited settings, critical conceptualisations of a good death for children across these diverse settings are unknown. Assessed against high-resource setting tenets of good death from carer perspectives, results suggest: carer agency is limited; advanced discussion of death does not occur; distress results from multiple burdens; basic survival is prioritised; physical pain is not an emphasised experience; and carers publicly accept death quickly while private grief continues. Hegemonic conceptions of 'good death' for children do not occur in contexts where agency is constrained and discussing death is taboo, limiting open discussion, acceptance, and control of dying experiences. Alternate forms of discourse and good death could still occur. Critical, grounded conceptualisations of good death in individual resource-limited settings should occur in advance of CPHC development to effectively relieve expansive suffering in these contexts
Agency (philosophy · Disenfranchised grief · Distress · Expansive · Good death · Grief · Limiting · Palliative care · Political science · Psychiatry · Social science · Sociology · Taboo · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Ethics and Legal Issues in Pediatric Healthcare · Law · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology
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| Unique citing works | 1 |
|---|---|
| Citations per year | 0,25 |
| Citation span | 2022 - 2022 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |