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The Challenges of Caring for an Adult Child with Schizophrenia in the Family

An Analysis of the Lived Experiences of Older Parents

Bibliographic Data

ID13775807
AuthorsMehdi Sharifi (0000-0002-5868-2097, Iranian Research Center on Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran), Seyed Jalal Younesi (0000-0001-6684-8790, University of Social Welfare and Rehabilitation Sciences, corresponding author), Seyyed Jalal Younesi (University of Social Welfare and Rehabilitation Sciences), Mahshid Foroughan (0000-0002-8801-4946, Iranian Research Center on Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran), Mohammad Hadi Safi (0000-0001-7013-5304, Ardakan University), Mohammad Saeed Khanjani (0000-0002-7473-1549, University of Social Welfare and Rehabilitation Sciences)
Year2023
Volume60
Pages469580221148867-469580221148867
Publication date2023-01-01
Open AccessYes
TypeARTICLE
VenueINQUIRY The Journal of Health Care Organization Provision and Financing (JOURNAL)
Journal identifiersISSN: 0046-9580 • E-ISSN: 1945-7243
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/00469580221148867
PMID36752143
OpenAlexW4319461940
LanguageEN
Citations received2
References cited46

The present study aimed to investigate the lived experiences of older parents regarding the challenges in caring for adult children with schizophrenia. The current study was conducted on 16 parental (mother or father) caregivers of adult children with schizophrenia using a descriptive phenomenological qualitative approach and Colaizzi's seven-step method. This study follows the Qualitative Research Checklist (COREQ). The findings showed that the parent caregivers' experiences could be classified into two main themes: "burden of care" and "Negative attitude and inefficient performance." The former consisted of three sub-themes including "disrupted social and family interactions," "helplessness and inefficient support," and "challenges of the healthcare system," while the latter had two sub-themes including "Negative attitude and inefficient performance of the caregivers" and "Negative attitude and inefficient performance of families and society." Older parents have to tolerate a significant burden of care due to their age and physical conditions. Improving the knowledge of specialists, the government's redoubled efforts in multifaceted support for patients and caregivers, creating an integrated team of specialists, and accepting and improving public attitudes against stigma and obvious discrimination in society as important priorities in improving the condition of caregivers and patients with schizophrenia were considered

Checklist · Developmental psychology · Family caregivers · Government (linguistics · Learned helplessness · Psychiatry · Qualitative research · Schizophrenia (object-oriented programming · Stigma (botany · Clinical Psychology · Family Caregiving in Mental Illness · Medicine · Mental Health Treatment and Access · Nursing · Psychology · Schizophrenia research and treatment

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Citations per year1
Citation span2024 - 2026 (3)
Highly citedNo

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