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Children and Decisionmaking in Health Research

Bibliographic Data

ID13877225
AuthorsFrancoise Baylis, Françoise Βaylis (0000-0003-2961-5802, corresponding author), Jocelyn Downie (0000-0001-6633-6883), Nuala Kenny
Year1999
Volume21
Issue4
Pages5-5
Publication date1999-07-01
Open AccessNo
TypeARTICLE
VenueIRB Ethics and Human Research (JOURNAL)
Journal identifiersISSN: 0193-7758 • E-ISSN: 2326-2222
PublisherHastings Center (PUBLISHER • US)
DOI10.2307/3564418
PMID11660758
OpenAlexW2444411306
LanguageEN
Citations received4

In March 1998 the Office of Bioethics Education and Research at Dalhousie University hosted a multidisciplinary workshop, “Assent and Dissent in Research Involving Children.” The overall objectives for the meeting were: first, to promote and protect the health and well-being of children by ensuring that potentially beneficial biomedical and health research involving children was not inappropriately precluded; and second, that when such research did proceed, it was appropriately respectful of children. For the purposes of the discussion, appropriate respect included both protection from harm and promotion of the capacity for independent decision-making. Particular attention was focused on the roles and responsibilities of children and their parent(s) or legal guardian(s) in decisionmaking about research participation

Management science · Engineering · Ethics and Legal Issues in Pediatric Healthcare · Ethics in Clinical Research · Ethics in medical practice · Psychology

  • Community Perspectives on Research Consent Involving Vulnerable Children in Western Kenya

    Open Access•Rachel Vreeman, Eunice Kamaara et al.•Journal of Empirical Research on…•2012

  • Contrasting Views of Risk Perception and Influence of Financial Compensation Between Adolescent Research Participants and Their Parents

    Open Access•Lori Wiener, Adrienne Viola et al.•Journal of Empirical Research on…•2014

  • An Observational Study of Children’s Involvement in Informed Consent for Exome Sequencing Research

    Open Access•Victoria A Miller, A Werner-Lin et al.•Journal of Empirical Research on…•2016

  • Children’s Decision-Making Involvement About Research Participation

    Open Access•Victoria A Miller, Chris Feudtner et al.•Journal of Empirical Research on…•2017

Citations per year0.29
Citation span2012 - 2017 (6)
Highly citedNo

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