Turning to Peers
Integrating Understanding of the Self, the Condition, and Others’ Experiences in Making Sense of Complex Chronic Conditions
Bibliographic Data
| ID | 14871191 |
|---|---|
| Authors | Aisling Ann O’Kane (0000-0001-8219-8126, University College London, corresponding author), Sun Young Park (0000-0003-4246-7437, University of Michigan), Helena M Mentis (0000-0002-0142-3529, University of Maryland, Baltimore County), Helena Mentis, Ann Blandford (0000-0002-3198-7122, University College London), Yunan Chen (0000-0002-0070-4484, University of California, Irvine) |
| Year | 2016 |
| Volume | 25 |
| Issue | 6 |
| Pages | 477-501 |
| Publication date | 2016-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Computer Supported Cooperative Work (CSCW (JOURNAL) |
| Journal identifiers | ISSN: 0925-9724 • E-ISSN: 1573-7551 |
| Publisher | Springer Science and Business Media LLC (PUBLISHER) |
| DOI | 10.1007/s10606-016-9260-y |
| PMID | 32355411 |
| OpenAlex | W2515282779 |
| Language | EN |
| Citations received | 4 |
| References cited | 60 |
People are increasingly involved in the self-management of their own health, including chronic conditions. With technology advances, the choice of self-management practices, tools, and technologies has never been greater. The studies reported here investigated the information seeking practices of two different chronic health populations in their quest to manage their health conditions. Migraine and diabetes patients and clinicians in the UK and the US were interviewed about their information needs and practices, and representative online communities were explored to inform a qualitative study. We found that people with either chronic condition require personally relevant information and use a broad and varied set of practices and tools to make sense of their specific symptoms, triggers, and treatments. Participants sought out different types of information from varied sources about themselves, their medical condition, and their peers' experiences of the same chronic condition. People with diabetes and migraine expended great effort to validate their personal experiences of their condition and determine whether these experiences were 'normal'. Based on these findings, we discuss the need for future personal health technologies that support people in engaging in meaningful and personalised data collection, information seeking, and information sharing with peers in flexible ways that enable them to better understand their own condition
Chronic condition · Disease · Internet privacy · Qualitative research · Self-management · Set (abstract data type · Sociology · Computer Science · Diabetes Management and Education · Health Literacy and Information Accessibility · Medicine · Mental Health and Patient Involvement · Psychology
Improving Chronic Illness Care
Coping with chronic illness
Reconceptualization of the Uncertainty in Illness Theory
Chronic Illness and the Quality of Life
Self-tracking as communication
Empathic communities
Temporality in Medical Work
A Review of 25 Years of CSCW Research in Healthcare
Information Infrastructures for Health Care
Understanding Reliability and Validity in Qualitative Research
Governing PatientsLikeMe
Using thematic analysis in psychology
Knowing Patients
Managing Life with a Chronic Condition
Grounded theory research
Embodied Action, Enacted Bodies
Ageing with telecare
Belief, knowledge and expertise
| Unique citing works | 4 |
|---|---|
| Citations per year | 1 |
| Citation span | 2022 - 2025 (4) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 4 |