Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being
A qualitative meta‐synthesis
Bibliographic Data
Family caregivers contribute to the sustainability of healthcare systems. Stroke is a leading cause of adult disability and many people with stroke rely on caregiver support to return home and remain in the community. Research has demonstrated the importance of caregivers, but suggests that caregiving can have adverse consequences. Despite the body of qualitative stroke literature, there is little clarity about how to incorporate these findings into clinical practice. This review aimed to characterise stroke caregivers' experiences and the impact of these experiences on their health and well-being. We conducted a qualitative meta-synthesis. Four electronic databases were searched to identify original qualitative research examining stroke caregivers' experiences. In total, 4,481 citations were found, with 39 studies remaining after removing duplicates and applying inclusion and exclusions criteria. Articles were appraised for quality using the Critical Appraisal Skills Programme (CASP), coded using NVivo software, and analysed through thematic synthesis. One overarching theme, 'caregiving is a full-time job' was identified, encompassing four sub-themes: (a) restructured life, (b) altered relationships, (c) physical challenges, and (d) psychosocial challenges. Community and institution-based clinicians should be aware of the physical and psychosocial consequences of caregiving and provide appropriate supports, such as education and respite, to optimise caregiver health and well-being. Future research may build upon this study to identify caregivers in most need of support and the types of support needed across a broad range of health conditions
Alternative medicine · CLARITY · Critical appraisal · Family caregivers · Psychiatry · Psychosocial · Qualitative research · Respite care · Thematic analysis · Dementia and Cognitive Impairment Research · Health disparities and outcomes · Medicine · Nursing · Psychology · Social Psychology · Stroke Rehabilitation and Recovery · Gerontology
Problematic caregiving activities among family carers of older adults with disabilities
Experiences of Disadvantage and Privilege of Care Recipients With a Migration Background in Acquired Brain Injury Rehabilitation
Effects of Coaching-Based Teleoccupational Guidance for Home-Based Stroke Survivors and Their Family Caregivers
The associations between caregivers’ psychosocial characteristics and caregivers’ depressive symptoms in stroke settings
Family quality of life after brain injuries
Why Do Family Caregivers Provide Insurance-Funded Long-Term Care in China? Empirical Evidence from Guangzhou City
Consequences of a Diagnostic Label
Detecting user experience issues from mHealth apps that support stroke caregiver needs
Understanding the Support and Information Needs of Family Members After Acquired Brain Injury
Evaluation of psychometric properties of persian version of quality of life of stroke caregivers
Family Health Partner’
Primary care practitioners’ perspectives of discharge communication and continuity of care for stroke survivors in Australia
Public long‐term care insurance scheme and informal care use among community‐dwelling older adults in China
Perceived health, caregiver overload and perceived social support in family caregivers of patients with Alzheimer’s
Between dogma and doubt
Experiences of Gender-Based Violence Among Disabled Women
Development of the Carers’ Alert Thermometer for Stroke Family Caregivers (CAT-S)
A narrative inquiry into how oldest-old care-givers of people with dementia manage age-related care-giving challenges
Supporting Individuals With an Acquired Brain Injury
A sense of injustice in care networks
Enhancing transparency in reporting the synthesis of qualitative research
Differences between caregivers and noncaregivers in psychological health and physical health
Checklists for improving rigour in qualitative research
Qualitative meta‐synthesis
Meta‐synthesis method for qualitative research
Methods for the thematic synthesis of qualitative research in systematic reviews
Maintaining Caregiving at Home
“A Lot of Things Passed Me by”
“Living With a Ball and Chain”
Emotional vitality in family caregivers
The impact of stroke on informal carers
Experience of family caregivers of community-dwelling stroke survivors and risk of elder abuse
The use of pluralistic evaluation to explore people’s experiences of stroke services in the community
The Existential Meaning of Couples' Long-Term Experience of Living with Stroke
Daughters Providing Poststroke Care
| Unique citing works | 20 |
|---|---|
| Citations per year | 3,33 |
| Citation span | 2020 - 2026 (7) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 19 |