Barriers to palliative care in sexual and gender minority patients with cancer
A scoping review of the literature
Bibliographic Data
| ID | 14948249 |
|---|---|
| Authors | Kelly Haviland (0000-0001-5667-0407, Supportive Care Medicine Memorial Sloan Kettering Cancer Center New York NY USA, corresponding author), Chasity Burrows Walters (0000-0003-3537-5227, Patient and Caregiver Engagement Memorial Sloan Kettering Cancer Center New York NY USA), Susan Newman (0000-0001-7220-4326, College of Nursing Medical University of South Carolina Charleston SC USA), Susan D Newman (0000-0002-1943-1199, Medical University of South Carolina) |
| Year | 2021 |
| Volume | 29 |
| Issue | 2 |
| Pages | 305-318 |
| Publication date | 2021-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health & Social Care in the Community (JOURNAL) |
| Journal identifiers | ISSN: 0966-0410 • E-ISSN: 1365-2524 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/hsc.13126 |
| PMID | 32767722 |
| OpenAlex | W3047977576 |
| Language | EN |
| Citations received | 8 |
| References cited | 44 |
The Institute of Medicine reports lesbian, gay, bisexual and transgender (LGBT) individuals having the highest rates of tobacco, alcohol and drug use leading to elevated cancer risks. Due to fear of discrimination and lack of healthcare practitioner education, LGBT patients may be more likely to present with advanced stages of cancer resulting in suboptimal palliative care. The purpose of this scoping review is to explore what is known from the existing literature about the barriers to providing culturally competent cancer-related palliative care to LGBT patients. This review will use the five-stage framework for conducting a scoping review developed by Arksey and O'Malley. The PubMed, Scopus, PsychINFO and Cochrane electronic databases were searched resulting in 1,442 citations. Eligibility criteria consisted of all peer-reviewed journal articles in the English language between 2007 and 2020 resulting in 10 manuscripts. Barriers to palliative cancer care for the LGBT include discrimination, criminalisation, persecution, fear, distress, social isolation, disenfranchised grief, bereavement, tacit acknowledgment, homophobia and mistrust of healthcare providers. Limited healthcare-specific knowledge by both providers and patients, poor preparation of legal aspects of advanced care planning and end-of-life care were underprovided to LGBT persons. As a result of these barriers, palliative care is likely to be provided for LGBT patients with cancer in a deficient manner, perpetuating marginalisation and healthcare inequities. Minimal research investigates these barriers and healthcare curriculums do not provide practitioners skills for administering culturally sensitive palliative care to LGBT patients
Distress · Family medicine · Grief · Health care · Lesbian · Palliative care · Political science · Psychiatry · Transgender · Clinical Psychology · LGBTQ Health, Identity, and Policy · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology
Targeting cancer prevention and screening interventions to LGBTQ communities
Branching-scenario games in acute end-of-life care education
Hidden grief is complicated
You Have the Right to Be Respected in Death, Just as in Life’
Psychometric validation of the Mexican version of the Lesbian, Gay, Bisexual, and Transgender Development of Clinical Skills Scale (LGBT-DOCSS-MX) among healthcare professionals in Mexico
Trust in providers and social media stories on expectations of discrimination among sexual and gender minority young adults
The Development of C-Care - an Arts-Based, Co-Produced Research Methodology for Understanding and Addressing Inequalities in Healthcare
Direct and vicarious exposure to healthcare discrimination and erasure among transgender and gender independent individuals
Disenfranchised Grief
Aspects of mental health among older lesbian, gay, and bisexual adults
Alcohol and tobacco use patterns among heterosexually and homosexually experienced California women
Lesbian, Gay, Bisexual, and Transgender–Related Content in Undergraduate Medical Education
Scoping reviews
An Ecological Perspective on Health Promotion Programs
Translating Social Ecological Theory into Guidelines for Community Health Promotion
The impact of a Naturally Occurring Retirement Communities service program in Maryland, USA
End-of-life care for gay, lesbian, bisexual and transgender people
A new model of care collaboration for community-dwelling elders
LGBT people's knowledge of and preparedness to discuss end-of-life care planning options
Cigarette smoking among gay and bisexual men
LGBT Data Collection Amid Social and Demographic Shifts of the US LGBT Community
Scoping studies
Exploring the Impact of Sexual Orientation on Experiences and Concerns about End of Life Care and on Bereavement for Lesbian, Gay and Bisexual Older People
| Unique citing works | 8 |
|---|---|
| Citations per year | 1,6 |
| Citation span | 2021 - 2026 (6) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 7 |