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Missing methods and epistemic injustice

A scoping review of qualitative research with AAC users

Bibliographic Data

ID14950200
AuthorsAlly Keane (History, Classics and Archaeology, Newcastle University, corresponding author), Joanna Kocsis (0000-0001-8798-4396, City and Regional Planning, Cornell University)
Year2025
Volume40
Issue9
Pages2564-2587
Publication date2025-09-02
Open AccessYes
TypeARTICLE
VenueDisability & Society (JOURNAL)
Journal identifiersISSN: 0968-7599 • E-ISSN: 1360-0508
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09687599.2025.2458005
OpenAlexW4407064224
LanguageEN
Citations received1
References cited65

Users of Augmentative and Alternative Communication (AAC) have been historically left out of research. Within knowledge production, we see a prioritisation of the spoken voice in a hierarchy that at worst excludes, and at best subjugates, mediated voices. This scoping review sought studies involving AAC users as research participants, to identify practical lessons that could help inform data collection strategies to address this gap. We identified several common logistical and ethical considerations, organising them into three ­overarching themes that require additional attention from researchers working with AAC users, specifically: timescales, communication partners, and personal agency. In documenting that AAC-friendly methods are missing from the literature, we relocate the problem of AAC users’ exclusion from qualitative research from the inability of individuals with complex communication needs to participate in research, to individual and institutional inability or unwillingness to design and fund data collection practices that suit the needs of AAC users

Data science · Epistemology · Injustice · Political science · Politics · Qualitative research · Social injustice · Social science · Sociology · Assistive Technology in Communication and Mobility · Computer Science · Digital Accessibility for Disabilities · Disability Education and Employment · Philosophy · Psychology · Social Psychology

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Citations per year1
Citation span2026 - 2026 (1)
Highly citedNo

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