How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities

A Scoping Review

Bibliographic Data

ID14950249
AuthorsDeirdre Nally (0000-0002-4615-6129, University of Limerick, corresponding author), Sean S Moore (0000-0002-3302-9796, University of Limerick), Rosemary Joan Gowran (0000-0001-8114-5815, Discipline Occupational Therapy, School of Allied Health, Faculty of Education and Health Sciences, Health Research Institute, Health Implementation Science and Technology, University of Limerick, Ireland; Assisting Living and Learning (ALL) Institute Maynooth University, Ireland; School of Health and Sports Science, University of the Sunshine Coast, Australia)
Year2022
Volume37
Issue10
Pages1728-1751
Publication date2022-11-26
Open AccessYes
TypeARTICLE
VenueDisability & Society (JOURNAL)
Journal identifiersISSN: 0968-7599 • E-ISSN: 1360-0508
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09687599.2021.1877114
OpenAlexW3156731464
LanguageEN
Citations received7
References cited46

Governments are obligated to safeguard social inclusion for disabled people through user-led personal assistance (PA) under Article 19 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). This scoping review was carried out to map and explore current knowledge on how governments internationally have managed PA schemes in response to the UNCRPD. The review examined 99 documents, and categorised the literature into the following themes; legislation, funding, model of service provision, governance and regulation, and the COVID-19 pandemic response. We include recommendations to co-design legislation and quality improvement policies to ensure that PA schemes are underpinned by a social model of disability mindset. Further research needs to be undertaken to guarantee that policymakers include the voice of PA users in the management of PA schemes.Points of interestThis article looked at 99 documents to find out how governments are managing personal assistance (PA). It found out that governments can often decide to spend less money on a PA scheme rather than protect our rights.To overcome this problem the documents recommended that legislation for PA schemes must be designed with disabled people. Governments must redirect their money from institutional services to community-based services. Eligibility criteria to control access and the costs of PA should be removed.This paper suggests that we need to have the voice of the PA user to direct the design and delivery of PA schemes. Supplemental data for this article is available online at https://doi.org/10.1080/09687599.2021.1877114

Business · Convention · Convention on the Rights of Persons with Disabilities · Corporate governance · Legislation · Mindset · Political science · Public relations · Sociology · Elder Abuse and Neglect · Healthcare Decision-Making and Restraints · Healthcare innovation and challenges · Law · Public Administration · Finance

Tools

Open DOIOpen Access