Protecting the future well
Access to preconception genetic screening and testing and the right not to use it
Bibliographic Data
| ID | 14970852 |
|---|---|
| Authors | Isabel Karpin (0000-0001-9326-3421, University of Technology Sydney, corresponding author), Isabel Ann Karpin |
| Year | 2016 |
| Volume | 25 |
| Issue | 1 |
| Pages | 71-86 |
| Publication date | 2016-01-02 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Griffith Law Review (JOURNAL) |
| Journal identifiers | ISSN: 1038-3441 • E-ISSN: 1839-4205 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/10383441.2016.1203274 |
| OpenAlex | W2468348105 |
| Language | EN |
| Citations received | 2 |
| References cited | 42 |
In this article, I assess the ethical and legal implications for a progressive and inclusive approach towards people with disability, of providing publicly funded and universal access to carrier testing and expanded carrier testing. In answering this question I focus on two main concerns namely whether such access (1) involves a neoliberal individualisation of risk and responsibility away from the State and (2) might impinge on the reproductive and other rights of people with disability. With respect to this last question I ask specifically is it possible to provide whole-population preconception genetic carrier screening while legally guaranteeing the reproductive rights to conceive of prospective parents, both women and men, who test positive as a carrier for an inheritable genetic condition
Ask price · Biology · Business · Genetic testing · Internet privacy · Law and economics · Political science · Population · Pregnancy · Project commissioning · Public relations · Publishing · Reproductive health · Reproductive rights · Reproductive technology · Sociology · State (computer science · Test (biology · Computer Science · Demography · Law · Medicine · Prenatal Screening and Diagnostics · Race, Genetics, and Society · Reproductive Health and Technologies · Genetics
Prenatal Genetic Testing and Screening
Othering and Being Othered in the Context of Health Care Services
Evidence for substantial genetic risk for psychopathy in 7‐year‐olds
Heredity 2.0
Autism as a biomedical platform for sex differences research
Expanded carrier screening panels—does bigger mean better
Epigenetic determinism in science and society
Frozen in perpetuity
Race’ matters
A critique of arguments supporting disability avoidance
Popular Discourses on the Neurotypical Woman
Deep Integration
Gender matters
The Transgenerational Consequences of Discrimination on African‐American Health Outcomes
Epigenetics and Obesity
Resignifying the sickle cell gene
Constructions of masculinity and their influence on men's well-being
Try to be healthy, but don't forgo your masculinity
The Genomic Revolution and Beliefs about Essential Racial Differences
The disability paradox
Inheriting Racist Disparities in Health
The Changing Terrains in Medical Sociology
From Social Structure to Gene Regulation, and Back
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,2 |
| Citation span | 2016 - 2016 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 2 |