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How do cystic fibrosis patients experience parenthood? A systematic review

Bibliographic Data

ID15084782
AuthorsAnne Jacob (0000-0002-2644-6479, Université Paris Cité), Jonathan Journiac (Université Paris Cité), Lotte Fischer (Université Paris Cité), Lisa Astrologo (Concordia University), Cécile Flahault (0000-0001-7930-205X, Université Paris Cité)
Year2021
Volume26
Issue1
Pages60-81
Publication date2021-01-01
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publications (PUBLISHER • US)
DOI10.1177/1359105320916539
LanguageEN
Citations received3
References cited26

Improved treatments for cystic fibrosis allow more patients to become parents. This article presents a systematic review of literature on cystic fibrosis patients’ experience of parenthood. Five databases (Cairn, Cochrane Library, PsycINFO, PubMed and ScienceDirect) produced 2335 documents that were screened. In total, 13 documents were retained and assessed with validated criteria. Five themes related to cystic fibrosis parenthood were discovered: population presentation, health and treatment adherence, adjustments, role of professionals and pressured temporality. Parenthood requires an important reorganisation of daily life in order to remain capable of childcare. Regardless of negative health impacts, cystic fibrosis parents have a positive outlook on parenthood

  • I am happy to be alive, but I prefer to have children without my chronic disease”

    Open Access•Anika König, Stefan Reinsch•New Genetics and Society•2024

  • Anticipating the future

    Open Access•Stefan Reinsch, Anika König•Social Science & Medicine•2025

  • Exploring the lived experiences of parents living with cystic fibrosis

    Open Access•Anne Jacob, Deschamps Hubert et al.•Journal of Health Psychology•2025

Citations per year1.5
Citation span2024 - 2025 (2)
Highly citedNo

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