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Association between Advance Care Planning for Older Adults and Family Caregivers’ Sense of Security in Home Care Settings

A Prospective Cohort Study

Bibliographic Data

ID15087201
AuthorsMasumi Shinohara (0000-0002-3552-6067, The University of Tokyo, corresponding author), Mariko Sakka (0000-0002-0694-8439, University of Tsukuba), Taisuke Yasaka (0000-0003-4400-8576, The University of Tokyo), Asa Inagaki (0000-0001-5058-3441, The University of Tokyo), Chie Fukui (0000-0001-9739-9561, The University of Tokyo), Maiko Noguchi‐Watanabe (0000-0001-6915-927X, Tokyo Medical and Dental University), Ayumi Igarashi (0000-0002-5292-8893, The University of Tokyo), Noriko Yamamoto‐mitani (0000-0002-1704-7011, The University of Tokyo)
EditorsGianpiero Greco (0000-0002-5023-3721)
Year2023
Volume2023
Pages1-11
Publication date2023-04-03
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth & Social Care in the Community (JOURNAL)
Journal identifiersISSN: 0966-0410 • E-ISSN: 1365-2524
PublisherWiley (PUBLISHER • GB)
DOI10.1155/2023/4250408
OpenAlexW4362579536
LanguageEN
Citations received1
References cited24

Family caregivers’ sense of security benefits older adults who receive home care. Advance care planning (ACP) is reported to affect family caregivers’ experience positively, but it might differ depending on family caregivers’ kin relationships with the older adults. This study aimed to investigate whether ACP for older adults in home care settings is associated with family caregivers’ sense of security and whether such an association depends on the family caregivers’ status as spouses or adult children. Clarifying this association may offer practical support for implementing ACP while maintaining family caregivers’ sense of security. This study was part of a prospective cohort study in Japan. The participants were older adults who used home-visit nursing services, their family caregivers, and the nurses who cared for them, recruited through the professional associations of home care nurses across Japan. Family caregivers answered a sense of security questionnaire, and the nurses were asked whether ACP was conducted. Data were collected three times from nurses and twice from family caregivers over a three-month period from August 2019 to June 2020. Multivariate logistic regression analyses were performed to examine the association between ACP implementation and positive changes in the sense of security scores after three months. Data from 169 cases were analyzed; 28.1% of the family caregivers were men and 55.6% were spouses. ACP was performed in 53.8% of the cases. The multivariate analysis showed an interactive effect between ACP implementation and family caregivers’ kin relationships. For spouses, ACP was significantly associated with a positive change in their sense of security. For adult children, such an association was not found. Thus, ACP might have a positive effect on caregiving spouses’ sense of security. Adult child caregivers, who often have multiple responsibilities and have difficulties facing their parents’ physical decline, may need support in addition to ACP

Affect (linguistics) · Association (psychology) · Cohort · Cohort study · Family caregivers · Logistic regression · Multivariate analysis · Next of kin · Family and Patient Care in Intensive Care Units · Geriatric Care and Nursing Homes · Medicine · Palliative Care and End-of-Life Issues · Psychology · Gerontology

  • Shared Decision Making and Advance Care Planning in the Context of Promoting Home Medical Care in Japan

    Open Access•Hisayuki Miura, Yuko Goto•Geriatrics and gerontology…•2026

  • Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment

    Alexi A Wright•JAMA•2008

  • The impact of advance care planning on end of life care in elderly patients

    Open Access•Karen Detering, K M Detering et al.•BMJ•2010

  • Definition and recommendations for advance care planning

    Open Access•Judith A C Rietjens, Judith Rietjens et al.•The Lancet Oncology•2017

  • Defining Advance Care Planning for Adults

    Open Access•Rebecca L Sudore, Hillary D Lum et al.•Journal of Pain and Symptom…•2017

Unique citing works1
Citations per year1
Citation span2026 - 2026 (1)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 1

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