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Social support among women with genital fistula in Uganda

Bibliographic Data

ID15098224
AuthorsEmily Hotchkiss (Institute for Global Health Sciences, University of California San Francisco), Hadija Nalubwama (0000-0003-4824-8841, Department of Obstetrics and Gynaecology, Makerere University College of Health Sciences), Suellen Miller (0000-0002-6949-1982, University of California, San Francisco), Nessa Ryan (0000-0002-8051-0021, Global Health Program, NYU School of Global Public Health), Justus Barageine (0000-0002-2427-8731, Department of Obstetrics and Gynaecology, Makerere University College of Health Sciences), Josaphat Byamugisha (0000-0002-3438-9662, Department of Obstetrics and Gynaecology, Makerere University College of Health Sciences), Alison M El Ayadi (0000-0003-2674-4887, University of California, San Francisco, corresponding author)
Year2023
Volume25
Issue3
Pages320-335
Publication date2023-03-01
Open AccessNo
TypeARTICLE
VenueCulture Health & Sexuality (JOURNAL)
Journal identifiersISSN: 1369-1058 • E-ISSN: 1464-5351
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/13691058.2022.2041098
PMID35200098
OpenAlexW4213436228
LanguageEN
References cited23

Resulting from prolonged obstructed labour, iatrogenic and traumatic aetiologies, female genital fistula in low-resource settings causes a significant physical and psychosocial burden. Social support is an important mechanism to build resilience to health challenges. This study aimed to understand the role of emotional, informational and tangible social support for Ugandan women affected by fistula. Thirty-three participants who had had fistula surgery 6-24 months prior to the study were recruited from Mulago Hospital in Kampala, Uganda. Data from in-depth interviews ( n = 16) and 4 focus group discussions were analysed thematically using a social support framework. Various individuals were key providers of social support across the different domains. They included family, friends, community organisations, and other women affected by fistula. Social support was critical in helping women cope with fistula, access fistula care, and post-repair recovery. Women relied heavily on tangible and emotional support to meet their physical and psychological needs. Support-enhancing interventions for women and their families, particularly those offering emotional and tangible support, may be a promising strategy for improving the experiences and quality of life of women affected by fistula

Fistula · Psychiatry · Psychological intervention · Psychological resilience · Psychosocial · Quality of life (healthcare · Social support · Diverticular Disease and Complications · Medicine · Nursing · Pelvic and Acetabular Injuries · Psychology · Social Psychology · Ureteral procedures and complications · Surgery

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Highly citedNo

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