Discourse of needs versus discourse of rights
Family caregivers responding to the sexuality of young South African adults with intellectual disability
Bibliographic Data
| ID | 15098466 |
|---|---|
| Authors | Callista K Kahonde (University of Cape Town), Callista Kahonde (0000-0003-3902-4213, University of Cape Town, corresponding author), Judith Mckenzie (0000-0002-2575-7718, University of Cape Town), Nathan J Wilson (0000-0002-6979-2099, Western Sydney University) |
| Year | 2019 |
| Volume | 21 |
| Issue | 3 |
| Pages | 278-292 |
| Publication date | 2019-03-04 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Culture Health & Sexuality (JOURNAL) |
| Journal identifiers | ISSN: 1369-1058 • E-ISSN: 1464-5351 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/13691058.2018.1465202 |
| PMID | 29847239 |
| OpenAlex | W2805196009 |
| Language | EN |
| Citations received | 4 |
| References cited | 29 |
Although most people with intellectual disability remain under the lifelong care and support of their families, there is a hiatus in research that explores the sexuality of people with intellectual disability within the family setting. Little is known about how the responses of family caregivers align with a human rights approach to the sexuality of people with intellectual disability, particularly in the South African context. This study used a constructivist grounded theory approach to explore how 25 South African family caregivers responded to the sexuality of their young adults with intellectual disability. Findings revealed that family caregivers prioritise what they deem as being the immediate needs of themselves and the young adults, over the young adults' rights to sexual autonomy. Practitioners, guided by the human rights approach, need to understand the individual and family context so as to better collaborate with family caregivers in supporting people with intellectual disability to realise their sexual rights. We apply two theories of needs to illuminate the conflict between needs-centred ethics and human rights approaches in a context where the family caregivers are the ones determining the sexuality needs of young adults with intellectual disability
Autonomy · Human rights · Human sexuality · Intellectual disability · Medical model of disability · Political science · Psychiatry · Sociology · Child Abuse and Trauma · Disability Rights and Representation · Gender Studies · Healthcare innovation and challenges · Law · Psychology
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| Unique citing works | 4 |
|---|---|
| Citations per year | 0,8 |
| Citation span | 2021 - 2024 (4) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 4 |