Beyond clinical trials

Social outcomes of structured stakeholder engagement in biomedical HIV prevention trials in China

Datos Bibliográficos

ID15098488
AutoresChuncheng Liu (0000-0001-5842-7988, University of California San Diego), Kathrine Meyers (0000-0002-8573-1958, Aaron Diamond AIDS Research Center, The Rockefeller University, New York, NY, USA, autor de correspondencia)
Año2020
Volumen22
Número12
Páginas1365-1381
Fecha de publicación2020-12-01
Peer ReviewedSí
Open AccessNo
TipoARTICLE
RevistaCulture Health & Sexuality (JOURNAL)
Identificadores de la revistaISSN: 1369-1058 • E-ISSN: 1464-5351
EditorialInforma UK Limited (PUBLISHER • GB)
DOI10.1080/13691058.2019.1683230
PMID31702447
OpenAlexW2985476388
IdiomaEN
Citas recibidas6
Referencias citadas19

Stakeholder engagement is increasingly recognised and institutionalised as an essential component of HIV-related biomedical research. However, we know little about stakeholder engagement's social outcomes, such as its influence on the community it engages with, in authoritarian regimes and beyond high-income countries. This study evaluates a multi-site structured stakeholder engagement programme conducted in parallel with two HIV prevention studies among men who have sex with men in China. We conducted a one-month ethnographic study and 41 semi-structured interviews with participants of a structured stakeholder engagement programme in six Chinese cities. We found that the structured stakeholder engagement programme offered community stakeholders additional and flexible funding, networking opportunities, increased clinical research literacy, and strengthened their connections with the community. However, the structured stakeholder programme generated unintended consequences in some cases. It caused community stakeholders to expend their social capital, introduced moral conflicts and created tension between stakeholders' 'community representative' and 'research assistant' identities. Our findings suggest that despite these unintended consequences, structured stakeholder engagement could effectively mitigate negative outcomes generated by such engagement if such programmes are more sensitive and responsive to the broader socio-political structure in which trials are embedded

China · Community engagement · Political science · Public engagement · Public relations · Stakeholder · Stakeholder analysis · Stakeholder engagement · Unintended consequences · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Mental Health and Patient Involvement