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I want to become someone!” gender, reproduction and the moral career of motherhood for women with sickle cell disorders

Bibliographic Data

ID15098520
AuthorsMaria J Berghs (0000-0002-6512-7921, De Montfort University, corresponding author), Simon Dyson (0000-0001-6015-9767, De Montfort University), Simon M Dyson (0000-0002-4735-2527, De Montfort University), Amelia Gabba (Sierra Leone Sickle Cell Disease Society, Freetown, Sierra Leone), Amelia Eva Gabba (Sierra Leone Agricultural Research Institute), Sia Evelyn Nyandemo, Sia Nyandemo (Sickle Cell Carers Awareness Network, Koidu, Sierra Leone), George O Roberts (Sierra Leone Agricultural Research Institute), George Roberts (0000-0002-0533-6385, Sierra Leone Sickle Cell Disease Society, Freetown, Sierra Leone), Gibrilla F Deen (0000-0001-6567-4821, University of Sierra Leone), Gibrilla Deen (University of Sierra Leone), Iyamide Thomas (Sierra Leone Sickle Cell Disease Society, Freetown, Sierra Leone)
Year2023
Volume25
Issue5
Pages633-647
Publication date2023-05-02
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueCulture Health & Sexuality (JOURNAL)
Journal identifiersISSN: 1369-1058 • E-ISSN: 1464-5351
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/13691058.2022.2083239
PMID35678290
OpenAlexW4281732976
LanguageEN
Citations received5
References cited35

In Sierra Leone, motherhood is being transformed into a moral career for women with sickle cell disorders. This qualitative participatory study, conducted in 2018, involved thirty-six semi-structured interviews with female care-givers and women with sickle cell disorders. Mothers argued that medical models of disease, combined with caring practices, are means to morally manage ideas of 'spoiled identity' and rethink the sick role, disability and life-outcomes of a potentially serious condition. Mothers encourage their children with sickle cell to stay in education as a route to access formal employment and careers that will not tax their bodies and ensure reproductive timing. Education and employment are framed temporally to ensure a delay so that girls can develop caring relationships and access motherhood safely. Understanding and encouraging the development of motherhood as a moral career, involving embodied hyper-vigilant caring practices, is valuable for the self-identity of mothers, allowing them to see a future for themselves and their children

Identity (music · Qualitative research · Reproduction · Sociology · Gender Studies · Global Maternal and Child Health · Hemoglobinopathies and Related Disorders · Prenatal Screening and Diagnostics · Psychology

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Unique citing works5
Citations per year1,67
Citation span2023 - 2025 (3)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 5
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