Keeping secrets, disclosing health information
An institutional ethnography of the social organisation of perinatal care for women living with HIV in Canada
Bibliographic Data
| ID | 15098588 |
|---|---|
| Authors | Allyson Ion (McMaster University, corresponding author) |
| Year | 2020 |
| Volume | 22 |
| Issue | 4 |
| Pages | 429-443 |
| Publication date | 2020-04-02 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Culture Health & Sexuality (JOURNAL) |
| Journal identifiers | ISSN: 1369-1058 • E-ISSN: 1464-5351 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/13691058.2019.1604996 |
| PMID | 31032702 |
| OpenAlex | W2943313851 |
| Language | EN |
| Citations received | 2 |
| References cited | 36 |
This paper describes findings from an institutional ethnography that arose out of the concerns of women living with HIV in Ontario, Canada, regarding the disclosure of their HIV status while accessing perinatal care. The enquiry traces the connections between women's experiences of perinatal care, the activities of healthcare providers delivering such care and the ruling relations that organise women's experiences and healthcare providers' activities. Focusing on HIV disclosure as a concern expressed by women, the findings make visible the day-to-day, routinised practices of healthcare providers working in perinatal care for women living with HIV, as well as the ideological discourses of 'fear of contagion' and 'AIDS hysteria' that contributed to producing the kinds of care experiences that were articulated by women. Opportunities to strengthen perinatal care policies and practices for women living with HIV are discussed
Ethnography · Family medicine · Health care · Ideology · Political science · Politics · Sociology · Gender Studies · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Law · Medicine · Nursing · Sex work and related issues
Combating HIV stigma in health care settings
Closing the Gap
Institutional Ethnography as Practice
Writing the Social
Fear of contagion and Aids
‘My biggest fear was that people would reject me once they knew my status…’
Examining public health nurses’ documentary practices
HIV disclosure as practice and public policy
Breaking the Glass Ceiling
Why Aren't You Breastfeeding?”
HIV-positive Mozambican migrants in South Africa
I am doing fine only because I have not told anyone’
You just can’t trust everybody”
Confessional Technologies and the Will to Disclose
Intersectionality, Policy‐Oriented Research and the Social Relations of Knowing
Successes and Failures in the Implementation of Evidence-Based Guidelines for Clinical Practice
Surviving Surveillance
Introduction
Political Activist as Ethnographer
"The Ideology of "Fag
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,67 |
| Citation span | 2023 - 2025 (3) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |