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From ‘half-dead’ to being ‘free’

Resistance to HIV stigma, self-disclosure and support for PMTCT/HIV care among couples living with HIV in Kenya

Bibliographic Data

ID15099124
AuthorsSydney A Spangler (Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, USA, corresponding author), L Abuogi (0000-0003-1492-5090, University of Colorado Denver), Lisa L Abuogi (University of Colorado Denver), Eliud Akama (0000-0003-1567-4756, Kenya Medical Research Institute), Elizabeth A Bukusi (0000-0002-2031-2808, Kenya Medical Research Institute), Anna Helova (0000-0002-2177-756X, University of Alabama at Birmingham), Pamela Musoke (0000-0003-2834-5695, University of Alabama at Birmingham), Wafula Z Nalwa (Migori County Referral Hospital, Kenya Ministry of Health, Migori, Kenya), Thomas A Odeny (Kenya Medical Research Institute), Thomas Odeny (0000-0002-1644-2378, Kenya Medical Research Institute), Maricianah Onono (0000-0001-6847-8762, Kenya Medical Research Institute), Iris Wanga (Kenya Medical Research Institute), Janet M Turan (0000-0002-7802-6206, University of Alabama at Birmingham)
Year2018
Volume20
Issue5
Pages489-503
Publication date2018-05-04
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueCulture Health & Sexuality (JOURNAL)
Journal identifiersISSN: 1369-1058 • E-ISSN: 1464-5351
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/13691058.2017.1359338
PMID28812457
OpenAlexW2747856253
LanguageEN
Citations received13
References cited25

In sub-Saharan Africa, self-disclosure of HIV-positive status may be a pivotal action for improving access to prevention of mother-to-child transmission services. However, understanding of HIV stigma and disclosure, and their effects on demand for care remains incomplete - particularly in the current context of new antiretroviral therapy guidelines. The purpose of this study was to explore these issues among self-disclosed couples living in southwest Kenya. We conducted 38 in-depth interviews with HIV-positive pregnant or postpartum women and their male partners. Of the 19 couples, 10 were HIV seroconcordant and 9 were serodiscordant. The textual analysis showed that HIV stigma continues to restrict full participation in community life and limit access to care by promoting fear, isolation and self-censorship. Against this backdrop, however, participants' narratives revealed varying forms and degrees of resistance to HIV stigma, which appeared to both produce and emerge from acts of self-disclosure. Such disclosure enabled participants to overcome fears and gain critical support for engaging in HIV care while further resisting HIV stigma. These findings suggest that programme interventions designed explicitly to stimulate and support processes of HIV stigma resistance and safe self-disclosure may be key to improving demand for and retention in HIV services

Antiretroviral therapy · Context (archaeology · Family medicine · Human immunodeficiency virus (HIV · Psychiatry · Psychological intervention · Resistance (ecology · Self-disclosure · Serodiscordant · Stigma (botany · Viral load · Adolescent Sexual and Reproductive Health · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Medicine · Psychology · Social Psychology

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    Bonita B Sharma, Eusebius Small et al.•Journal of Applied Communication…•2022

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    Open Access•Danielle Denardo, A Mojola et al.•SSM - Qualitative Research in…•2022

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    Open Access•Laura Cox, Felix Okuta et al.•AIDS Care•2026

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    L Abuogi, K Hampanda et al.•AIDS Care•2020

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  • Non-Disclosure of a Pregnant Woman’s HIV Status to Her Partner is Associated with Non-Optimal Prevention of Mother-to-Child Transmission

    Open Access•Carine Jasseron, Laurent Mandelbrot et al.•AIDS and Behavior•2011

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    Carla Makhlouf Obermeyer, Parijat Baijal et al.•American Journal of Public Health•2011

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Unique citing works13
Citations per year2,17
Citation span2020 - 2026 (7)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 13
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