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Health-related stigma, perceived social support, and their role in quality of life among women with lipedema

Bibliographic Data

ID15217372
AuthorsJohanna Falck (0000-0003-4292-5493, Jönköping University, corresponding author), Karen L Herbst (0000-0002-9079-9754, The Roxbury Institute), Karen Herbst (The Roxbury Institute and The US Standard of Care Committee), Bo Rolander (0000-0001-7314-2622, Futurum, Academy for Health and Care, Jönköping County Council), Annette Nygårdh (0000-0002-3187-8639, University of Borås), Lise-Lotte Jonasson (Jönköping University), Lise‐lotte Jonasson (0000-0002-0848-6098, Jönköping University), Jan Mårtensson (0000-0002-7406-8732, Jönköping University)
Year2025
Volume46
Issue11
Pages1278-1296
Publication date2025-05-08
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Care For Women International (JOURNAL)
Journal identifiersISSN: 0739-9332 • E-ISSN: 1096-4665
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/07399332.2025.2499487
PMID40339162
OpenAlexW4410202846
LanguageEN
Citations received1
References cited62

Lipedema is a chronic disease in adipose tissue affecting women. The distinctive body appearance in lipedema, often mistaken for obesity, may be detrimental to social life. In our online cross-sectional survey study, conducted from June to September 2021 among 245 women with lipedema, we found significantly more health-related stigma compared to an aged-matched general female population ( N = 1872), leading to an overall lower quality of life. Conversely, strong social support was associated with better social and emotional functioning. As such, healthcare professionals must, even in the early stages, recognize this disease and address its impact on psychosocial health and well-being

Disease · Family medicine · Health related quality of life · Human immunodeficiency virus (HIV · Psychiatry · Psychotherapist · Quality of life (healthcare · Social stigma · Social support · Stigma (botany · Clinical Psychology · Lymphatic System and Diseases · Medicine · Obesity and Health Practices · Psychology · Social Psychology · Whipple's Disease and Interleukins · Gerontology

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Unique citing works1
Citations per year1
Citation span2025 - 2025 (1)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 1
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