Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia
Findings from a prospective longitudinal real-world study
Bibliographic Data
| ID | 15300449 |
|---|---|
| Authors | Jennifer Drahos (0000-0002-8454-9863, Vertex Pharmaceuticals (United States), corresponding author), Adriana Boateng-Kuffour (0009-0009-7366-6990, Vertex Pharmaceuticals (United States)), Melanie Calvert (0000-0002-1856-837X, Cellular Therapeutics (United Kingdom)), Laurice Levine (Independent Sector), Neelam Dongha, Nanxin Li (0009-0006-4412-0997, Vertex Pharmaceuticals (United States)), Zahra Pakbaz (University of California, Irvine), Farrukh Shah (0000-0001-5975-1309, NHS Blood and Transplant), Farrukh T Shah, Nick Ainsworth (0000-0003-4640-6666), Antony P Martin (0000-0003-4383-6038) |
| Year | 2025 |
| Volume | 34 |
| Issue | 7 |
| Pages | 2005-2017 |
| Publication date | 2025-04-17 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Quality of Life Research (JOURNAL) |
| Journal identifiers | ISSN: 0962-9343 • E-ISSN: 1573-2649 |
| Publisher | Springer Science+Business Media (PUBLISHER • DE) |
| DOI | 10.1007/s11136-025-03961-8 |
| PMID | 40246805 |
| OpenAlex | W4409537643 |
| Language | EN |
| References cited | 40 |
Participants reported substantial humanistic and economic burdens associated with living with TDT. Our findings highlight the need for alternative treatment options that contribute to improvements in HRQoL and reduce economic burden in this patient population
Environmental health · Intensive care medicine · Longitudinal study · Pathology · Prospective cohort study · Public health · Quality of life (healthcare · Quality of Life Research · Thalassemia · Chronic Disease Management Strategies · Hemoglobinopathies and Related Disorders · Iron Metabolism and Disorders · Medicine · Nursing · Gerontology · Internal Medicine · Surgery
| Highly cited | No |
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