Neurocognitive impairment and patient-proxy agreement on health-related quality of life evaluations in recurrent high-grade glioma patients

Bibliographic Data

ID15301069
AuthorsIvan Caramanna (0000-0003-1520-499X, Amsterdam University Medical Centers, corresponding author), Martin Klein (0009-0009-1265-649X, Amsterdam Neuroscience), M B Klein (0009-0005-9618-3167), Martin J van den Bent (0000-0001-5710-5127, Erasmus MC Cancer Institute), Martin van den Bent, Ahmed Idbaïh (0000-0001-5290-1204, Centre National de la Recherche Scientifique), Martin J B Taphoorn, Linda Dirven (0000-0001-9157-9895, Leiden University Medical Center), Thierry Gorlia (European Organisation for Research and Treatment of Cancer), Jaap C Reijneveld (0000-0002-2257-3147, European Organisation for Research and Treatment of Cancer)
Year2025
Volume34
Issue8
Pages2405-2418
Publication date2025-06-05
Open AccessYes
TypeARTICLE
VenueQuality of Life Research (JOURNAL)
Journal identifiersISSN: 0962-9343 • E-ISSN: 1573-2649
PublisherSpringer Science+Business Media (PUBLISHER • DE)
DOI10.1007/s11136-025-03984-1
PMID40471413
OpenAlexW4411069379
LanguageEN
References cited32

The results of this study suggest that the moderate level of patient-proxy agreement observed in HGG patients would allow reliance on proxies' reports. However, the differences observed between neurocognitively impaired and intact patients stress the importance of taking into consideration patient's clinical and neurocognitive status as well as their mental capacity for adequate clinical decision making in general and for PRO-related issues

Cognition · Glioma · Health related quality of life · Neurocognitive · Proxy (statistics · Psychiatry · Public health · Quality of life (healthcare · Quality of Life Research · Statistics · Cancer-related cognitive impairment studies · Clinical Psychology · Dementia and Cognitive Impairment Research · Glioma Diagnosis and Treatment · Medicine · Nursing · Psychology · Gerontology · Internal Medicine