Decision-making about non-invasive prenatal testing
Women’s moral reasoning in the absence of a risk of miscarriage in Germany
Bibliographic Data
| ID | 15349727 |
|---|---|
| Authors | Stefan Reinsch (0000-0002-3609-5115, Brandenburg Medical School Theodor Fontane, Neuruppin, Germany, corresponding author), Anika König (0000-0002-2884-1421, University of Lucerne), Christoph Rehmann-Sutter (0000-0001-7642-5556, Institute for History of Medicine and Science Studies, University of Lübeck, Lübeck, Germany) |
| Year | 2020 |
| Volume | 40 |
| Issue | 2 |
| Pages | 199-215 |
| Publication date | 2020-08-16 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | New Genetics and Society (JOURNAL) |
| Journal identifiers | ISSN: 1463-6778 • E-ISSN: 1469-9915 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/14636778.2020.1805305 |
| OpenAlex | W3060945184 |
| Language | EN |
| Citations received | 10 |
| References cited | 27 |
This paper examines women’s experiences with decision-making about non-invasive prenatal testing (NIPT). Such tests offer knowledge about chromosomal disorders early in pregnancy, without the risk of miscarriage associated with invasive procedures such as amniocentesis. Based on qualitative interviews with women in Germany who used, or declined, NIPT, we show how some women, who would not consider amniocentesis due to the risk of miscarriage, welcome the knowledge provided by, and the additional agency resulting from, NIPT. For others, declining the offer to “know more” becomes increasingly difficult to articulate. The absence of risk strips women of a “good reason” to justify their decision not to test, thus implicitly challenging their “right not to know.” Moreover, NIPT heightens moral dilemmas within relationships with partners, existing children, and sometimes other close relatives. While clinically “non-invasive,” we argue that NIPT changes decision-making in an ethically and socially highly significant way
Agency (philosophy · Amniocentesis · Developmental psychology · Fetus · Gynecology · Miscarriage · Moral agency · Obstetrics · Pregnancy · Prenatal diagnosis · Sociology · Test (biology · Ethics and Legal Issues in Pediatric Healthcare · Ethics in Clinical Research · Medicine · Prenatal Screening and Diagnostics · Psychology · Social Psychology
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Genetic Responsibility in Germany and Israel
Virtuous Indecisiveness
The social shaping of a diagnosis in Next Generation Sequencing
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Sex in Limbo
Anticipating the future
The Shifting Landscape of Prenatal Testing
Experiences of Mandarin-speaking and English-speaking women of undergoing non-invasive prenatal genetic screening
Dépendance versus autonomie… De la signification et de l'imprégnation de ces notions dans les pratiques médicosociales
Keeping the Backdoor to Eugenics Ajar
Realizing responsibility. Institutional routines, critical intervention, and the “big” questions in the controversy over non-invasive prenatal testing in Germany
Rethinking Relational Autonomy
Women's decision-making in prenatal screening
Reproductive Entanglements
| Unique citing works | 10 |
|---|---|
| Citations per year | 0,45 |
| Citation span | 2004 - 2025 (22) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 10 |