A Phenomenological Account of HIV Disclosure Experiences of Children and Adolescents from Northern and Southern Ghana
Bibliographic Data
| ID | 15466835 |
|---|---|
| Authors | Seth Christopher Yaw Appiah (0000-0002-9844-1036, Kwame Nkrumah University of Science and Technology, corresponding author), Inge Kroidl (0000-0002-6949-346X, Ludwig-Maximilians-Universität München), Michael Hoelscher (0000-0002-6937-8330, Ludwig-Maximilians-Universität München), Olena Ivanova (0000-0002-8276-7891, Ludwig-Maximilians-Universität München), Jonathan Mensah Dapaah (0000-0002-9349-6273, Kwame Nkrumah University of Science and Technology) |
| Year | 2019 |
| Volume | 16 |
| Issue | 4 |
| Pages | 595-595 |
| Publication date | 2019-02-18 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Environmental Research and Public Health (JOURNAL) |
| Journal identifiers | ISSN: 1661-7827 • E-ISSN: 1660-4601 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/ijerph16040595 |
| PMID | 30781717 |
| OpenAlex | W2912569781 |
| Language | EN |
| Citations received | 6 |
| References cited | 35 |
Disclosure of HIV status to infected children, though challenged by caregiver dilemma, remains central in achieving the United Nations Programme on HIV and AIDS (UNAIDS) global goal of 90/90/90. This study explores children's HIV disclosure experiences across Northern and Southern Ghana. A qualitative interpretative phenomenological design facilitated the recruitment of 30 HIV positive disclosed children and adolescents aged 9−19 years in 12 antiretroviral treatment (ART) centers in Northern and Southern Ghana between January 2017 and June 2018. Data was collected via in-depth interviews. We used phenomenological analysis applying concepts and categories identification, patterns and interconnections searching, mapping, theme building and constant comparative technique to draw conclusions. Disclosure of HIV status to children occurred with little or no preparation. Caregivers intentionally or out of dilemma often prolonged or postponed disclosure to when children aged older. Illness severity and disease progression principally defined the need for disclosure. Children preference for early status disclosure averaged at age 10 was demonstrated despite the initial disclosure experience of shock and disappointment. There was improved medication adherence despite the challenge of limited knowledge about HIV transmission, financial difficulty and food insecurity. Context and culturally adapted pre- and post- disclosure guideline laced with social protection package is needed to support HIV positive children
Context (archaeology · Developmental psychology · Dilemma · Disappointment · Family medicine · Geography · Guideline · Interpretative phenomenological analysis · Pathology · Psychiatry · Qualitative research · Sociology · Adolescent Sexual and Reproductive Health · Clinical Psychology · HIV/AIDS Research and Interventions · Medicine · Poverty, Education, and Child Welfare · Psychology · Social Psychology · Pediatrics
Disclosure of HIV status to children on antiretroviral therapy
It’s time to tell
“They are starting from ten steps back”
HIV Disclosure to Infected Children Involving Peers
Pain, Anger, and the Fear of Being Discovered Persist Long after the Disclosure of HIV Serostatus among Adolescents with Perinatal HIV in Rural Communities in South Africa
Disclosure of HIV/Aids status to infected children in Ghana – A north-south comparison of barriers and enablers
Phenomenological research methods
Hermeneutic Phenomenological Research
Disclosure of an HIV Diagnosis to Children
HIV Infection and Aids in Sub-Saharan Africa
Prevalence of, and barriers to the disclosure of HIV status to infected children and adolescents in a district of Ghana
‘Are we allowed to disclose?’
HIV knowledge, stigma, and illness beliefs among pediatric caregivers in Ghana who have not disclosed their child's HIV status
Perceived social support and the psychological well-being of Aids orphans in urban Kenya
Disclosure of diagnosis by parents and caregivers to children infected with HIV
Quality of life among Ghanaian adolescents living with perinatally acquired HIV
Psychological distress among Ugandan adolescents living with HIV
Towards elimination of mother-to-child transmission of HIV in Ghana
Social support and Quality of Life
Coping strategies of HIV-affected households in Ghana
Perceived social support disparities among children affected by HIV/Aids in Ghana
Prevalence and Pattern of Disclosure of HIV Status in HIV-Infected Children in Ghana
Evaluating Interpretive Inquiry
Phenomenological Approaches in Psychology and Health Sciences
Orphanage caregivers' perceptions of children's emotional needs
Caregiver perceptions of children in their care and motivations for the care work in children's homes in Ghana
Telling the truth is the best thing
Determining Validity in Qualitative Inquiry
| Unique citing works | 6 |
|---|---|
| Citations per year | 1 |
| Citation span | 2020 - 2026 (7) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 5 |