Screening of Patient Impairments in an Outpatient Clinic for Suspected Rare Diseases—A Cross-Sectional Study
Bibliographic Data
| ID | 15467709 |
|---|---|
| Authors | Christoph Gutenbrunner (0000-0002-6522-1942, Medizinische Hochschule Hannover), Joerg Schiller (Medizinische Hochschule Hannover), Vega Goedecke (Medizinische Hochschule Hannover), Christina Lemhoefer (Jena University Hospital), Andrea Boekel (0000-0003-1485-2151, Medizinische Hochschule Hannover, corresponding author) |
| Year | 2022 |
| Volume | 19 |
| Issue | 14 |
| Pages | 8874-8874 |
| Publication date | 2022-07-21 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Environmental Research and Public Health (JOURNAL) |
| Journal identifiers | ISSN: 1661-7827 • E-ISSN: 1660-4601 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/ijerph19148874 |
| PMID | 35886725 |
| OpenAlex | W4286433314 |
| Language | EN |
| References cited | 1 |
The results show functional restrictions in the areas of mental well-being and activity. As expected, the health-related quality of life is reduced as compared to healthy people. Almost half of the participants reported significant pain-related impairments, however, only 9% of all respondents stated that they had received appropriate pain therapy. The results show the need for rehabilitation-specific skills in the care and counseling of patients with rare diseases
Activities of daily living · Chronic pain · Cross-sectional study · Family medicine · Health care · Outpatient clinic · Pathology · Physical therapy · Quality of life (healthcare · Chronic Disease Management Strategies · Genomics and Rare Diseases · Health Systems, Economic Evaluations, Quality of Life · Medicine · Nursing · Internal Medicine · Rehabilitation
| Citation velocity | historical |
|---|---|
| Highly cited | No |