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Parental Perceptions of the Impact of a Child’s Complex Chronic Condition

A Validation Study of the Impact on Family Scale

Bibliographic Data

ID15468355
AuthorsSandra Portela Alves (0000-0003-2052-4816, Universidade do Porto, corresponding author), Ana Carolina Braz (0000-0002-4141-0378), Luís Graça (0000-0001-7510-2202, Polytechnic Institute of Viana do Castelo), Anne Marie Fontaine (0000-0001-9232-8692, Universidade do Porto)
Year2024
Volume21
Issue5
Pages642-642
Publication date2024-05-17
Open AccessYes
TypeARTICLE
VenueInternational Journal of Environmental Research and Public Health (JOURNAL)
Journal identifiersISSN: 1661-7827 • E-ISSN: 1660-4601
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/ijerph21050642
PMID38791856
OpenAlexW4397002243
LanguageEN
References cited8

The diagnosis of a child's complex chronic illness may impact family relationships and cohesion. The Impact on Family Scale (IFS) is an instrument used to assess the parental perception of the effects of children's chronic illness on family life. With a sample of 110 mothers and fathers between the ages of 29 and 50 who have a child with a complex chronic illness, we examine evidence of the validity of the IFS for use in Portugal within this specific family configuration, (1) comparing its factor structure with the original one; (2) assessing its reliability; and (3) evaluating its relationship with life satisfaction and family cohesion/acceptance. As expected, CFA analysis showed that IFS is a one-factor reliable instrument with 12 items (Cronbach's alpha = 0.910), which are negatively correlated with satisfaction with life (r = -0.229, p = 0.016) and positively correlated with family acceptance and cohesion (r = 0.363; p < 0.001). The results support the validity of the IFS in families with children and adolescents with a complex chronic illness. The implications of the use of this instrument for research and professional practice is analyzed

Cohesion (chemistry · Cronbach's alpha · Developmental psychology · Perception · Psychometrics · Scale (ratio · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Family and Disability Support Research · Family Support in Illness · Psychology

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Highly citedNo

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