I Am the Home Care Agency”
The Dementia Family Caregiver Experience Managing Paid Care in the Home
Bibliographic Data
As the locus of long-term care in the United States shifts from institutions to the community, paid caregivers (i.e., home health aides, personal care attendants) are providing more hands-on care to persons with dementia living at home. Yet, little is known about how family caregivers engage with paid caregivers. We conducted in-depth, semi-structured interviews ( n = 15) with family caregivers, of persons living at home with severe dementia, and enriched our findings with data from a second cohort of family caregivers of persons with dementia ( n = 9). Whether paid caregivers were hired privately or employed via a Medicaid-funded agency, family caregivers reported that they needed to manage paid caregivers in the home. Core management tasks were day-to-day monitoring and relationship building with family caregivers; training paid caregivers and coordinating care with homecare agencies was also described. In order to support family caregivers of individuals with dementia at home, it is important consider their preferences and skills in order to effectively manage paid caregivers. Support of efforts to build a high-quality paid caregiving workforce has the potential to improve not only care delivered to persons with dementia, but the experiences of their family caregivers
Agency (philosophy · Dementia · Family caregivers · Family medicine · Group home · Health care · Home health · Long-term care · Nursing homes · Personal care · Psychiatry · Sociology · Dementia and Cognitive Impairment Research · Geriatric Care and Nursing Homes · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology · Gerontology
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The Disproportionate Impact Of Dementia On Family And Unpaid Caregiving To Older Adults
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We share the care
I know they are not trained in dementia’
Three Approaches to Qualitative Content Analysis
Thematic Analysis
| Unique citing works | 4 |
|---|---|
| Citations per year | 1 |
| Citation span | 2022 - 2026 (5) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 4 |