Public Attitude towards Biobanking

An Italian University Survey

Bibliographic Data

ID15470826
AuthorsChiara Aleni (0000-0002-7511-9255, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”, corresponding author), Carmela Rinaldi (0000-0002-2730-5846, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Valentina Bettio (0000-0003-4506-3884, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Eleonora Mazzucco (0000-0002-6900-0071, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Annamaria Antona (0000-0002-8050-3462, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Cristina Meini (0000-0002-6568-7646, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Emiliano Loria (0000-0003-3569-9758, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Paolo Bonvicini (0009-0005-2759-8334, Cognition Behaviour Technology), Silvia Vittoria Cracas (Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Silvia Caristia (0000-0003-0660-1547, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Antonio Rimedio (0000-0003-4472-1830, Ethics Committee of the “Maggiore della Carità” Hospital, 28100 Novara, Italy), Fabrizio Faggiano (0000-0003-2382-0848, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Daniela Ferrante (0000-0002-6056-3839, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”), Daniela Capello (0000-0001-9157-8753, Università degli Studi del Piemonte Orientale “Amedeo Avogadro”)
Year2022
Volume19
Issue20
Pages13041-13041
Publication date2022-10-11
Open AccessYes
TypeARTICLE
VenueInternational Journal of Environmental Research and Public Health (JOURNAL)
Journal identifiersISSN: 1661-7827 • E-ISSN: 1660-4601
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/ijerph192013041
PMID36293613
OpenAlexW4304588861
LanguageEN
References cited33

Biobanks have established a critical role in biomedical research by collecting, preserving, organizing, and disseminating biospecimens and related health data, contributing to precision medicine development. Participation in biobanks is influenced by several factors, such as trust in institutions and scientists, knowledge about biobanking, and the consideration of benefit sharing. Understanding public attitudes, fears, and concerns toward biobanking is fundamental to designing targeted interventions to increase trust towards biobanks. The aim of our study was to investigate the level of knowledge and perception of biobanks in students and personnel of the University of Piemonte Orientale. An online questionnaire was designed and administered via e-mail. A total of 17,758 UPO personnel and students were invited to participate in the survey, and 1521 (9.3%) subjects completed the survey. The results showed that 65.0% of the participants were aware of the term "biobank" and knew what the activity of a biobank was, and 76.3% of subjects were willing to provide biospecimens to a research biobank, whereas 67.3% of the respondents were willing to contribute, in addition to biospecimens, their health and lifestyle data. Concerns were raised about the confidentiality of the information (25.6%) and the commercial use of the samples (25.0%). In conclusion, participants were aware of the role that biobanks play in research and were eager to participate for the sake of furthering scientific research. Still, several concerns need to be addressed regarding the confidentiality of the data along with the commercial use of the samples and associated data

Biobank · Bioinformatics · Computer security · Confidentiality · Medical education · Perception · Psychological intervention · Public health · Biomedical Ethics and Regulation · Computer Science · CRISPR and Genetic Engineering · Ethics in Clinical Research · Medicine · Nursing · Psychology

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