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The Definition Dilemma

How Definitions of Disability Shape Statistics on Social Participation

Bibliographic Data

ID15474389
AuthorsJudith Baart (0009-0005-3242-0274, University of Humanistic Studies, corresponding author), Willem Elbers (0000-0002-0485-368X, Radboud University Nijmegen), Arie Schippers (0000-0002-6376-1718, University of Humanistic Studies), Sarah Polack (0000-0002-7524-7396, London School of Hygiene & Tropical Medicine)
Year2025
Volume22
Issue4
Pages603-603
Publication date2025-04-11
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueInternational Journal of Environmental Research and Public Health (JOURNAL)
Journal identifiersISSN: 1661-7827 • E-ISSN: 1660-4601
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/ijerph22040603
PMID40283827
OpenAlexW4409361767
LanguageEN
References cited19

To monitor progress in including persons with disabilities, including in interventions which can improve their health and quality of life, it is crucial to collect data on their participation. However, there are many different ways of defining disability and thus categorising individuals as disabled/not disabled, which may impact measures of participation. This study aims to assess the relationship between three different measures of disability and the level of participation of persons with disabilities. We analysed data from a population-based survey of disability amongst Syrian refugees in Istanbul, which collected data on disability using the Washington Group enhanced set of disability questions as well a two-question set asking about perceived activity limitations due to disability. The prevalence of disability ranged from 13.5 to 22.4% depending on the measure used. The group of people that are categorised as disabled also differs, indicating who is being seen as disabled changes when a different measure is used. Levels of participation, with regards to paid work, education and being partnered, also varied by measure, for example, being in paid work ranged from 26% to 38%. These findings underscore the importance of carefully selecting and clearly defining disability measures in studies, (health) interventions and policy contexts

Dilemma · Disabled people · Inclusion (mineral · International Classification of Functioning, Disability and Health · Medical model of disability · Political science · Psychiatry · Psychological intervention · Quality of life (healthcare · Refugee · Set (abstract data type · Work (physics · Applied Psychology · Cerebral Palsy and Movement Disorders · Computer Science · Disability Rights and Representation · Inclusion and Disability in Education and Sport · Medicine · Psychology · Social Psychology · Gerontology · Rehabilitation

  • Social Inclusion of People with Disabilities

    Open Access•Arie Rimmerman•Social Inclusion of People with…•2012

  • Exploring the Use of Washington Group Questions to Identify People with Clinical Impairments Who Need Services including Assistive Products

    Open Access•Dorothy Boggs, Hilda Kuper et al.•International Journal of…•2022

  • Self-Report and Administrative Data on Disability and IEP Status

    Open Access•Karrie A Shogren, Jesse R Pace et al.•Journal of Disability Policy…•2022

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    Shaun Grech•Disability & Society•2009

  • Disability as deprivation of capabilities

    Open Access•Jean-Francois Trani, P Bakhshi et al.•Social Science & Medicine•2018

  • Disability and Poverty

    Nora Groce, Maria Kett et al.•Third World Quarterly•2011

  • Estimating disability prevalence and disability-related inequalities

    Open Access•Anna Amilon, Kristine M Hansen et al.•Social Science & Medicine•2021

  • The social meaning of disability

    Open Access•J Grue•Sociology of Health & Illness•2016

Citation velocityhistorical
Highly citedNo

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Open DOIOpen Access
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