Quality of Life of Adolescents Facing a Parental Illness
A Person-Oriented Approach
Bibliographic Data
| ID | 15475635 |
|---|---|
| Authors | Jade Pilato (Université Paris Cité, corresponding author), Géraldine Dorard (0000-0002-5587-4480, Université Paris Cité), Basilie Chevrier (0000-0002-5263-2283, Aix-Marseille Université), Agnes Leu (0000-0002-5451-837X, University of Basel), Aurélie Untas (0000-0001-8159-8654, Université Paris Cité) |
| Year | 2022 |
| Volume | 19 |
| Issue | 13 |
| Pages | 7892-7892 |
| Publication date | 2022-06-27 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Environmental Research and Public Health (JOURNAL) |
| Journal identifiers | ISSN: 1661-7827 • E-ISSN: 1660-4601 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/ijerph19137892 |
| PMID | 35805549 |
| OpenAlex | W4283646563 |
| Language | EN |
| Citations received | 2 |
| References cited | 16 |
Studies that have investigated the health-related quality of life (HRQoL) of adolescents facing a parental illness showed inconsistent results, and none used a person-oriented approach allowing for a deeper understanding of their experience. The aim of this study was to compare the HRQoL of adolescents facing a parental illness to that of their peers, and to explore their HRQoL through a person-oriented approach. The sample consisted of 1324 adolescents recruited in secondary schools (11-15 years old). Adolescents completed questionnaires assessing sociodemographic characteristics, parental illness, HRQoL (KIDSCREEN-52), and academic performance and caring activities (MACA-YC18). Adolescents facing a parental illness showed significantly lower HRQoL than their peers on all dimensions. The cluster analysis yielded five patterns of HRQoL among adolescents facing a parental illness: Low HRQoL ; High HRQoL ; Moderate HRQoL with High Social Acceptance ; High Well-Being, High Moods and Emotions, and High Social Support and Peers . These clusters differed according to demographics, the type of parental illness, illness perception, academic performance, and level of caring activities. The Low HRQoL cluster showed especially low academic performance and high level of caring activities. This multidimensional HRQoL evaluation thus helps to foreground the diversity of these adolescents' experiences in order to better address their needs
Cluster (spacecraft · Demographics · Perception · Quality of life (healthcare · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Demography · Family Support in Illness · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology
Maternal Depression and Child Psychopathology
The Brief Illness Perception Questionnaire
Young Carers Research, Practice and Policy
When Mom or Dad has cancer
Children of Parents with a Mental Illness
A Model of the Effects of Parental Illness on Youth Adjustment and Family Functioning
Family Functioning and Psychological Health of Children with Mentally Ill Parents
Age and gender differences in health-related quality of life of children and adolescents in Europe
Health-related quality of life (HRQoL) in children of ill or substance abusing parents
Health-related quality of life in a sample of Australian adolescents
Young Carers
Making life work for both themselves and their parents alone- how children aged 11–16 view themselves in relation to their chronically ill parents in a primary health care setting
Gaining knowledge about parental mental illness
Young carers in Sweden—A pilot study of care activities, view of caring, and psychological well‐being
Capturing ruminative exploration
Families affected by parental mental illness
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,67 |
| Citation span | 2023 - 2026 (4) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 2 |