Cancer Health Literacy and Willingness to Participate in Cancer Research and Donate Bio-Specimens
Bibliographic Data
Although it has been well documented that poor health literacy is associated with limited participation in cancer clinical trials, studies assessing the relationships between cancer health literacy (CHL) and participation in research among diverse populations are lacking. In this study, we examined the relationship between CHL and willingness to participate in cancer research and/or donate bio-specimens (WPRDB) among African Americans, Latinos, and Whites. Participants completed the Cancer Health Literacy Test and the Multidimensional Cancer Literacy Questionnaire. Total-scale and subscale scores, frequencies, means, and distributions were computed. Analyses of variance, the Bonferroni procedure, and the Holm method were used to examine significant differences among groups. Cronbach's alphas estimated scales' internal consistency reliability. Significant interactions were found between race/ethnicity, gender, and CHL on WPRDB scales and subscale scores, even after education and age were taken into account. Our study confirms that CHL plays an important role that should be considered and researched further. The majority of participants were more willing to participate in non-invasive research studies (surveys, interviews, and training) or collection of bio-specimens (saliva, check cells, urine, and blood) and in studies led by their own healthcare providers, and local hospitals and universities. However, participants were less willing to participate in more-invasive studies requiring them to take medications, undergo medical procedures or donate skin/tissues. We conclude that addressing low levels of CHL and using community-based participatory approaches to address the lack of knowledge and trust about cancer research among diverse populations may increase not only their willingness to participate in research and donate bio-specimens, but may also have a positive effect on actual participation rates
Cancer · Cronbach's alpha · Ethnic group · Family medicine · Health care · Health literacy · Literacy · Psychometrics · Scale (ratio · Clinical Psychology · Ethics in Clinical Research · Global Cancer Incidence and Screening · Medicine · Patient-Provider Communication in Healthcare · Psychology · Gerontology · Internal Medicine
“My Blood, You Know, My Biology Being out There…”
Cultural Insiders and Graphic Stories to Promote Research Readiness Among the South Asian Community
Testing the Preliminary Validity of a Multidimensional Framework for Studying the Effects of Cancer Health Literacy on Cancer Screening Behaviors among Diverse Populations
Exploring the Relationship between Medical Research Literacy and Respondents’ Expressed Likelihood to Participate in a Clinical Trial
Understanding Diverse Perspectives on Genetic Research Through Focus Group Talk
A Systematic Review of Community‐Based Participatory Research to Enhance Clinical Trials in Racial and Ethnic Minority Groups
Are Racial and Ethnic Minorities Less Willing to Participate in Health Research?
Understanding health literacy
Disparities in knowledge and willingness to donate research biospecimens
Lessons Learned from Community-Led Recruitment of Immigrants and Refugee Participants for a Randomized, Community-Based Participatory Research Study
A Systematic Review of Barriers and Facilitators to Minority Research Participation Among African Americans, Latinos, Asian Americans, and Pacific Islanders
Trust in Health Research Relationships
Racial Differences Among Factors Associated with Participation in Clinical Research Trials
| Citations per year | 0.71 |
|---|---|
| Citation span | 2019 - 2024 (6) |
| Highly cited | No |