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Creation and Validation of the European Portuguese Version of the Systemic Lupus Erythematous Quality of Life Questionnaire

Bibliographic Data

ID15505331
AuthorsPedro Lopes Ferreira (0000-0002-9448-9542, University of Coimbra, corresponding author), Rachel Santana Cunha (0000-0002-3855-1129, Centro Hospitalar do Tâmega e Sousa), Rita Novais Cunha (Rheumatology Unit, Tâmega e Sousa Hospital Centre, 4564-007 Penafiel, Portugal), Carla Macieira (University of Lisbon), Tomás Fontes (0000-0002-5629-7961, University of Lisbon), Luís Inês (0000-0003-3172-3570, University of Beira Interior), Luís Sousa Inês (Rheumatology Department, Coimbra Hospital and University Centre, 3004-561 Coimbra, Portugal), Ana Isabel Maduro (0000-0003-3461-4257, University of Coimbra), Ana Carolina Martins (0000-0001-7581-4074, Universidade do Porto), Frederico Rajão (Algarve Biomedical Center), Carolina Furtado (0000-0001-5380-7180, Hospital do Divino Espírito Santo), Anabela Barcelos (0000-0002-4116-8964, Centro Hospitalar do Baixo Vouga)
Year2023
Volume20
Issue2
Pages897-897
Publication date2023-01-04
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueInternational Journal of Environmental Research and Public Health (JOURNAL)
Journal identifiersISSN: 1661-7827 • E-ISSN: 1660-4601
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/ijerph20020897
PMID36673651
OpenAlexW4313584988
LanguageEN
References cited17

(1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European Portuguese population and to assess its reliability and validity for patients with SLE. (2) Methods: Two independent translators translated the original version of the SLEQoL questionnaire into Portuguese. A back-translated version was produced. The Portuguese version of the questionnaire was reviewed and tested for validity and reliability. Cronbach's alpha and the internal validity index were calculated to verify the internal reliability and validity of the content. Rheumatologists filled out the SLE Disease Activity Score (SLE-DAS) and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index SLICC/ACR-DI questionnaires. (3) Results: This study involved 180 patients, of which 93.8% were females. The results indicated very high internal consistency reliability (α = 0.949), low correlations between the SLEQoL and the SLE-DAS, a correlation between all SLEQoL dimensions and all SF-36 dimensions (except for "response to treatment" and "self-image"), and good correlation scores with both the EQ-5D-5L index and VAS. (4) Conclusion: The Portuguese version of the SLEQoL questionnaire is valid and reliable for the measurement of HRQoL in SLE patients

Portuguese · Quality of life (healthcare · Systemic lupus · Atherosclerosis and Cardiovascular Diseases · Medicine · Nursing · Philosophy · Systemic Lupus Erythematosus Research · Systemic Sclerosis and Related Diseases · Internal Medicine

  • Quality criteria were proposed for measurement properties of health status questionnaires

    Open Access•Caroline B Terwee, Sandra D M Bot et al.•Journal of Clinical Epidemiology•2007

  • The MOS 36-ltem Short-Form Health Survey (SF-36)

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  • A hybrid modelling approach for eliciting health state preferences

    Open Access•Pedro Lopes Ferreira, Patrícia Antunes et al.•Quality of Life Research•2019

  • Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)

    Open Access•Michael Herdman, C Gudex et al.•Quality of Life Research•2011

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Highly citedNo

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