Designing a Patient-Friendly Website for Newly Diagnosed Cancer Patients with the Participatory Health Research Approach
Bibliographic Data
| ID | 15511641 |
|---|---|
| Authors | Juliane Rackerseder (University of Cologne, corresponding author), Carolin Hornbach (0000-0001-8271-8339, University of Cologne), Peter Dicks, H E Kerek-Bodden, Theresia Krieger (0000-0002-7414-7318, University of Cologne) |
| Year | 2022 |
| Volume | 19 |
| Issue | 4 |
| Pages | 1969-1969 |
| Publication date | 2022-02-10 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Environmental Research and Public Health (JOURNAL) |
| Journal identifiers | ISSN: 1661-7827 • E-ISSN: 1660-4601 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/ijerph19041969 |
| OpenAlex | W4211106639 |
| Language | EN |
| Citations received | 1 |
| References cited | 15 |
High-quality and user-friendly patient information material (PIM) is essential for understanding and accepting a new care programme. When optimising the PIM of the integrated, cross-sectoral psycho-oncological (isPO) care programme, the design of the fifth element of the patient information strategy—the patient-friendly website—was still pending. In this paper, the iterative design process of the patient-friendly isPO website is described. We applied the participatory health research (PHR) approach to enable high levels of participation of its respective end-users (e.g., cancer survivors), service providers, and experts. The design included six steps: (1) initiation, (2) planning, (3) initial idea exploration, (4) creation of a first working version, (5) three optimisation loops, and (6) dissemination. An exploratory mixed-methods design has been used. Qualitative data collection included document analysis, interviews, and participatory action research (PAR) loops with focus groups. Finally, the quality of the newly designed website was quantitatively assessed with the UPIM-Check, a user-friendly instrument for assessing and optimising PIM. The PHR approach was indispensable for the design of our needs-oriented, patient-friendly website. Participants’ high levels of participation strongly contributed to the products’ quality. The final descriptive statistical evaluation shows that the final website was rated very good on average by its end-users
Action research · Business · Citizen journalism · Data collection · Exploratory research · Focus group · Medical education · Operations management · Participatory action research · Participatory design · Process (computing · Process management · Quality (philosophy · Service (business · Service provider · Sociology · User Friendly · World Wide Web · Computer Science · Engineering · Health Literacy and Information Accessibility · Medicine · Mobile Health and mHealth Applications · Patient-Provider Communication in Healthcare · Psychology · Marketing
Gesundheitswissenschaften
Mixed Methods in Health Sciences Research
Development of the Patient Education Materials Assessment Tool (Pemat)
Unpacking 'Participation'
Partizipative Forschung
Handbuch Qualitative Forschung in der Psychologie
Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (Upim-Check)
Optimizing Patient Information Material for a New Psycho-Oncological Care Program Using a Participatory Health Research Approach in Germany
Envisioning Participatory Action Research Entremundos
Participatory action research
Discern
Using thematic analysis in psychology
A Ladder Of Citizen Participation
Participatory learning for sustainable agriculture
| Unique citing works | 1 |
|---|---|
| Citations per year | 0.2 |
| Citation span | 2021 - 2021 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |