Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder

A Qualitative Descriptive Study

Bibliographic Data

ID15513552
AuthorsNicole Hayes (0000-0003-2391-7615, The University of Queensland, corresponding author), Lisa K Akison (0000-0002-2667-3743, The University of Queensland), Sarah Goldsbury (University of Otago), Nicole Hewlett (0000-0002-3546-0934, Queensland University of Technology), Elizabeth Elliott (0000-0002-6501-5487, The University of Sydney), Elizabeth J Elliott (The University of Sydney), Amy Finlay-Jones (Telethon Kids Institute, Perth, WA 6009, Australia), Amy Finlay‐jone (0000-0002-1336-4001, The Kids Research Institute Australia), Dianne C Shanley (0000-0002-3849-075X, Griffith University), Kerryn Bagley (0000-0003-1856-0527, La Trobe University), Andi Crawford (University of Auckland), Haydn Till (0000-0002-0292-6355, Gold Coast Hospital), Alison Crichton (0000-0003-2089-4286, Monash Children’s Hospital), Rowena Friend (0000-0001-6502-7579, Patches Assessment Service, Berrimbah, NT 0828, Australia), Karen M Moritz (0000-0002-8085-0034, The University of Queensland), Raewyn Mutch (0000-0001-6654-8237, Harvard University), Sophie A Harrington (0000-0003-0754-0678), Sophie Harrington (National Organisation for Fetal Alcohol Spectrum Disorder Australia, Adelaide, SA 5000, Australia), Andrew Webster (0000-0002-5782-0793, West Moreton Health, Ipswich, QLD 4305, Australia), Andrew R Webster (0000-0001-6915-9560, Ipswich Hospital), Natasha Reid (0000-0001-9813-5613, The University of Queensland)
Year2022
Volume19
Issue10
Pages5823-5823
Publication date2022-05-10
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueInternational Journal of Environmental Research and Public Health (JOURNAL)
Journal identifiersISSN: 1661-7827 • E-ISSN: 1660-4601
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/ijerph19105823
PMID35627361
OpenAlexW4229451189
LanguageEN
Citations received4
References cited45

Since the 2016 release of the Australian Guide to the Diagnosis of Fetal Alcohol Spectrum Disorder (FASD), considerable progress has been made in the identification and diagnosis of the disorder. As part of a larger process to review and update the Guide, the aim of this study was to identify review priorities from a broad range of stakeholders involved in the assessment and diagnosis of FASD. Sixty-two stakeholders, including healthcare practitioners, researchers, other specialists, individuals with cultural expertise, lived experience and consumer representatives completed an online survey asking them to describe up to five priorities for the review of the Australian Guide to the Diagnosis of FASD. A total of 267 priorities were described. Content analysis of responses revealed priority areas relating to diagnostic criteria ( n = 82, 30.7%), guideline content ( n = 91, 34.1%), guideline dissemination ( n = 15, 5.6%) and guideline implementation ( n = 63, 23.6%). Other considerations included prevention and screening of FASD ( n = 16, 6%). Engaging stakeholders in setting priorities will ensure the revised Australian Guide can be as relevant and meaningful as possible for the primary end-users and that it meets the needs of individuals with lived experience who will be most affected by the diagnosis

Fetal Alcohol Spectrum Disorder · Guideline · Identification (biology · Medical education · Pathology · Political science · Public relations · Stakeholder · Gestational Diabetes Research and Management · Homelessness and Social Issues · Medicine · Prenatal Substance Exposure Effects · Psychology

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