Family perspectives on independent living for adults with cerebral palsy
Barriers, support needs, and quality of life
Bibliographic Data
| ID | 15522877 |
|---|---|
| Authors | Virginia Aguayo (0000-0003-1420-6918, Universidad de Salamanca, corresponding author), Laura Esteban (0000-0001-9174-7457, Universidad de Salamanca), Laura García-Domínguez (Universidad de Salamanca), Miguel Ángel Verdugo (Universidad de Salamanca) |
| Year | 2026 |
| Volume | 17 |
| Pages | 1785081-1785081 |
| Publication date | 2026-03-11 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Frontiers in Psychiatry (JOURNAL) |
| Journal identifiers | ISSN: 1664-0640 • E-ISSN: 1664-0640 |
| Publisher | Frontiers Media (PUBLISHER • CH) |
| DOI | 10.3389/fpsyt.2026.1785081 |
| PMID | 41890419 |
| OpenAlex | W7134920456 |
| Language | EN |
| References cited | 56 |
The findings suggest that independent living for adults with CP is constrained less by individual attitudes than by structural, organizational, and relational conditions. Families play a pivotal role in sustaining autonomy, often at considerable personal cost, which may in turn limit both caregiver well-being and the autonomy of the person with CP. Strengthening rights-based, personalized, and adequately resourced support systems, together with sustained training and emotional support for families, is essential to advance independent living and inclusive community participation for adults with CP
Autonomy · Cerebral palsy · Family caregivers · Family life · Obligation · Qualitative research · Quality of life (healthcare · Reflexivity · Thematic analysis · Cerebral Palsy and Movement Disorders · Disability Rights and Representation · Family and Disability Support Research
Autonomía e interdependencia. La ética del cuidado en la discapacidad
El modelo de calidad de vida y apoyos
Disability and Human Rights
Community Living, Intellectual Disability and Extensive Support Needs
How do people with learning disabilities talk about professionals and organizations? Discourse on support practices for independent living
Success and its discontents
What is good personal assistance made of? Results of a European survey
Assessing the Barriers to Achieving Genuine Housing Choice for Adults with a Learning Disability
Using thematic analysis in psychology
Changing the Social Relations of Research Production
Conceptualizing Supports and the Support Needs of People With Intellectual Disability
Successfully Negotiating Life Challenges
Qualitative Quality
| Highly cited | No |
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