Parental perspectives on the quality of life of children with Down syndrome
Bibliographic Data
| ID | 15523344 |
|---|---|
| Authors | Elisa Fucà (0000-0002-8795-7424, Bambino Gesù Children's Hospital), Paolo Galassi (0000-0002-0570-0060, Bambino Gesù Children's Hospital), Floriana Costanzo (0000-0002-0877-9691, Bambino Gesù Children's Hospital, corresponding author), Stefano Vicari (0000-0001-7667-5811, Università Cattolica del Sacro Cuore) |
| Year | 2022 |
| Volume | 13 |
| Pages | 957876-957876 |
| Publication date | 2022-08-12 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Frontiers in Psychiatry (JOURNAL) |
| Journal identifiers | ISSN: 1664-0640 • E-ISSN: 1664-0640 |
| Publisher | Frontiers Media (PUBLISHER • CH) |
| DOI | 10.3389/fpsyt.2022.957876 |
| PMID | 36032222 |
| OpenAlex | W4291147617 |
| Language | EN |
| Citations received | 1 |
| References cited | 11 |
Down Syndrome (DS) is the most common chromosome abnormality and the most frequent cause of developmental delay/intellectual disabilities in children. Although the investigation of the quality of life (QoL) is crucial in children with DS, relatively poor attention has been paid to this topic. The current study aimed to evaluate parent-reported QoL in a group of children with DS and identify children's individual and clinical features associated with different levels of QoL. We included in the study 73 children with DS (5-12 years) and investigated the parent-reported levels of QoL by means of the Pediatric Quality of Life Inventory. Cognitive level and the presence of behavioral difficulties were also evaluated. The overall parent-reported QoL of children with DS was high; emotional functioning was the domain with the highest level of QoL. Moreover, parents perceived low levels of QoL in children who exhibited low IQ, worse analogical reasoning, worse adaptive skills, more frequent challenging behaviors, more ritualistic/sameness behavior and more autistic symptoms. No differences emerged for family variables, namely parental education and employment, between the two groups with high and low QoL, as perceived by parents. The understanding of cognitive and behavioral factors - such as analogical reasoning, socio-communication abilities and challenging behaviors - related with different degrees of QoL in children with DS is crucial for the development of effective strategies to promote the improvement of the QoL
Abnormality · Cognition · Developmental psychology · Down syndrome · Intellectual disability · Psychiatry · Quality of life (healthcare · Autism Spectrum Disorder Research · Clinical Psychology · Down syndrome and intellectual disability research · Family and Disability Support Research · Psychology
The PedsQLTM* 4.0 as a Pediatric Population Health Measure
Parent proxy-report of their children's health-related quality of life
The Economic Costs of Childhood Disability
Health-related Quality of Life in Children with Autism Spectrum Disorder and Children with Down Syndrome
Quality of life and comprehensive health supervision for children with Down syndrome in Thailand
The Relationship of Adaptive and Maladaptive Behaviour to Social Outcomes for Individuals with Developmental Disabilities
PedsQLTM 4.0
Similarity and causality in the use of social analogies
The World Health Organization quality of life assessment (WHOQOL)
A metaphor-enriched social cognition
| Unique citing works | 1 |
|---|---|
| Citations per year | 1 |
| Citation span | 2025 - 2025 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |