Referral to cancer genetic counseling
Do migrant status and patients’ educational background matter
Bibliographic Data
| ID | 15673291 |
|---|---|
| Authors | Jeanine A M van der Giessen (0000-0002-0883-3192, University Medical Center Utrecht, corresponding author), E van Riel (University Medical Center Utrecht), Mary E Velthuizen (0000-0003-4574-9798, University Medical Center Utrecht), Sandra Van Dulmen (0000-0002-1651-7544, Netherlands Institute for Health Services Research), A M Van Dulmen, Margreet G E M Ausems (0000-0003-0305-3477, University Medical Center Utrecht) |
| Year | 2017 |
| Volume | 8 |
| Issue | 4 |
| Pages | 303-310 |
| Publication date | 2017-09-03 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Community Genetics (JOURNAL) |
| Journal identifiers | ISSN: 1868-310X • E-ISSN: 1868-6001 |
| Publisher | Springer Science+Business Media (PUBLISHER • DE) |
| DOI | 10.1007/s12687-017-0326-4 |
| PMID | 28868568 |
| OpenAlex | W2752362337 |
| Language | EN |
| Citations received | 3 |
| References cited | 39 |
Participation rates in cancer genetic counseling differ among populations, as patients with a lower educational background and migrant patients seem to have poorer access to it. We conducted a study to determine the present-day educational level and migrant status of counselees referred to cancer genetic counseling. We assessed personal characteristics and demographics of 731 newly referred counselees. Descriptive statistics were used to describe these characteristics. The results show that about 40% of the counselees had a high educational level and 89% were Dutch natives. Compared to the Dutch population, we found a significant difference in educational level (p = < 0.01) and migrant status (p = < 0.001). This suggests disparities in cancer genetic counseling and as a result of that, suboptimal care for vulnerable groups. Limited health literacy is likely to pose a particular challenge to cancer genetic counseling for counselees with a lower education or a migrant background. Our study points to considerable scope for improvement in referring vulnerable groups of patients for cancer genetic counseling
Cancer · Demographics · Environmental health · Family medicine · Genetic counseling · Health care · Health literacy · Population · Referral · BRCA gene mutations in cancer · Demography · Global Cancer Incidence and Screening · Health Literacy and Information Accessibility · Medicine · Gerontology · Internal Medicine
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| Citations per year | 0.33 |
|---|---|
| Citation span | 2017 - 2020 (4) |
| Highly cited | No |