Uncertainty and the Nicu Experience
A Qualitative Evaluation of Family and Provider Perspectives
Bibliographic Data
| ID | 15713512 |
|---|---|
| Authors | Katharine Griffin Gorsky (University of California, San Francisco), Saloni Butala (University of Southern California), Madison House (0000-0002-2513-1184, University of Southern California), Chelsea Moon (0009-0005-3144-272X, University of Southern California), Sam Calvetti (0000-0003-1741-4640, University of Southern California), Tenzin Khando (University of California, Los Angeles), Michele D Kipke (0000-0002-1032-2324, University of Southern California), Michele Kipke (University of Southern California), Ashwini Lakshmanan (0000-0001-8259-1905, University of Southern California, corresponding author) |
| Year | 2023 |
| Volume | 10 |
| Issue | 11 |
| Pages | 1745-1745 |
| Publication date | 2023-10-27 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Children (JOURNAL) |
| Journal identifiers | ISSN: 2227-9067 • E-ISSN: 2227-9067 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/children10111745 |
| PMID | 38002836 |
| OpenAlex | W4387972746 |
| Language | EN |
| Citations received | 1 |
| References cited | 17 |
There is limited information regarding caregiver and provider perspectives on uncertainty across the continuum of the neonatal intensive care unit (NICU) experience. Open-ended semi-structured interviews were conducted with providers and English- and Spanish-speaking caregivers of infants with a history of admission to a quaternary safety-net NICU. Major themes were generated using inductive-deductive thematic analysis. Seventy-six individuals participated in the study: 47 caregivers and 29 providers. The median gestational age of the infants was 29 weeks and 85% were classified as having chronic complex disease per the Pediatric Medical Complexity Algorithm. Most providers were neonatologists (37%) and nurses (27%) and more than half had over ten years of experience. A conceptual model of caregiver uncertainty was developed and key domains included drivers of uncertainty and its impact, and factors influencing coping and adaptation. Our analysis found a positive association between caregiver information gathering, clinical continuity, support systems, maternal mental health supports, and witnessing a child's progress and the development of adjustment to chronic uncertainty. These results suggest key areas for intervention that can promote parental adaptation to the uncertainty inherent in the NICU experience
Adaptation (eye · Coping (psychology · Developmental psychology · Mental health · Neonatal intensive care unit · Psychiatry · Qualitative research · Thematic analysis · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Family and Patient Care in Intensive Care Units · Infant Development and Preterm Care · Medicine · Nursing · Psychology
| Unique citing works | 1 |
|---|---|
| Citations per year | 1 |
| Citation span | 2025 - 2025 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |