Making Data the Drug”
A Pragmatic Pilot Feasibility Randomized Crossover Trial of Data Visualization as an Intervention for Pediatric Chronic Pain
Datos Bibliográficos
| ID | 15713703 |
|---|---|
| Autores | Katelynn E Boerner (0000-0003-1652-4813, BC Children's Hospital), Unma Desai (0000-0003-1908-0162, University of British Columbia), Jessica Luu (BC Children's Hospital), Karon E MacLean (0000-0003-2969-4627, University of British Columbia), Tamara Munzner (0000-0002-3294-3869, University of British Columbia), Haley Foladare (University of British Columbia), Jane Shen (BC Children's Hospital), Javed Gill (BC Children's Hospital), Tim F Oberlander (0000-0003-4781-6579, BC Children's Hospital, autor de correspondencia) |
| Año | 2023 |
| Volumen | 10 |
| Número | 8 |
| Páginas | 1355-1355 |
| Fecha de publicación | 2023-08-07 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Children (JOURNAL) |
| Identificadores de la revista | ISSN: 2227-9067 • E-ISSN: 2227-9067 |
| Editorial | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/children10081355 |
| PMID | 37628354 |
| OpenAlex | W4385637359 |
| Idioma | EN |
| Citas recibidas | 1 |
| Referencias citadas | 52 |
Data tracking is a common feature of pain e-health applications, however, viewing visualizations of this data has not been investigated for its potential as an intervention itself. We conducted a pilot feasibility parallel randomized cross-over trial, 1:1 allocation ratio. Participants were youth age 12-18 years recruited from a tertiary-level pediatric chronic pain clinic in Western Canada. Participants completed two weeks of Ecological Momentary Assessment (EMA) data collection, one of which also included access to a data visualization platform to view their results. Order of weeks was randomized, participants were not masked to group assignment. Objectives were to establish feasibility related to recruitment, retention, and participant experience. Of 146 youth approached, 48 were eligible and consented to participation, two actively withdrew prior to the EMA. Most participants reported satisfaction with the process and provided feedback on additional variables of interest. Technical issues with the data collection platform impacted participant experience and data analysis, and only 48% viewed the visualizations. Four youth reported adverse events not related to visualizations. Data visualization offers a promising clinical tool, and patient experience feedback is critical to modifying the platform and addressing technical issues to prepare for deployment in a larger trial
Alternative medicine · Chronic pain · Clinical trial · Crossover study · Data collection · Data mining · Intervention (counseling · Physical therapy · Randomized controlled trial · Visualization · Applied Psychology · Computer Science · Digital Mental Health Interventions · Health Policy Implementation Science · Medicine · Mental Health Research Topics · Nursing · Psychology
The epidemiology of chronic pain in children and adolescents revisited
Consort 2010 statement
Research electronic data capture (Redcap)—A metadata-driven methodology and workflow process for providing translational research informatics support
Ecological Momentary Assessment
The Impact of Posttraumatic Stress Disorder on Clinical Presentation and Psychosocial Treatment Response in Youth with Functional Abdominal Pain Disorders
An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales
Effectiveness-implementation Hybrid Designs
From ideas to efficacy
Three Approaches to Qualitative Content Analysis
| Obras citantes distintas | 1 |
|---|---|
| Citas por año | 1 |
| Intervalo de citas | 2025 - 2025 (1) |
| Velocidad de citación | recent |
| Altamente citado | No |
| Tipos de cita | Neutras: 1 |