Parent Perspective on Care Coordination Services for Their Child with Medical Complexity
Bibliographic Data
| ID | 15714836 |
|---|---|
| Authors | Rhonda Cady (0000-0001-7047-6811, Gillette Children's Specialty Healthcare, corresponding author), John Belew (0000-0001-6480-9632, Gillette Children's Specialty Healthcare) |
| Year | 2017 |
| Volume | 4 |
| Issue | 6 |
| Pages | 45-45 |
| Publication date | 2017-06-06 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Children (JOURNAL) |
| Journal identifiers | ISSN: 2227-9067 • E-ISSN: 2227-9067 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/children4060045 |
| PMID | 28587274 |
| OpenAlex | W2623224928 |
| Language | EN |
| Citations received | 8 |
| References cited | 43 |
The overarching goal of care coordination is communication and co-management across settings. Children with medical complexity require care from multiple services and providers, and the many benefits of care coordination on health and patient experience outcomes have been documented. Despite these findings, parents still report their greatest challenge is communication gaps. When this occurs, parents assume responsibility for aggregating and sharing health information across providers and settings. A new primary-specialty care coordination partnership model for children with medical complexity works to address these challenges and bridge communication gaps. During the first year of the new partnership, parents participated in focus groups to better understand how they perceive communication and collaboration between the providers and services delivering care for their medically complex child. Our findings from these sessions reflect the current literature and highlight additional challenges of rural families, as seen from the perspective of the parents. We found that parents appreciate when professional care coordination is provided, but this is often the exception and not the norm. Additionally, parents feel that the local health system's inability to care for their medically complex child results in unnecessary trips to urban-based specialty care. These gaps require a system-level approach to care coordination and, consequently, new paradigms for delivery are urgently needed
Business · Family medicine · General partnership · Health care · Medical home · Perspective (graphical · Political science · Primary care · Public relations · Specialty · Computer Science · Healthcare Policy and Management · Healthcare Systems and Technology · Medicine · Nursing · Primary Care and Health Outcomes · Psychology
Care Coordination Experiences of Whole Families Caring for Children With Medical Complexity in Rural Areas
Family Caregivers' Experiences of Services for Children With Medical Complexity
Home-Based Care for Children with Serious Illness
Implementing a Care Coordination Strategy for Children with Medical Complexity in Ontario, Canada
Family and Child Characteristics Associated With Caregiver Challenges for Medically Complex Children
Utilization of Parallel Resources and Sociodemographic Factors in Treating Children with Complex Chronic Diseases
Mothers’ Experiences of Care Coordination for Children with Disabilities
Moving from Challenge to Change
Children With Medical Complexity
Continuity of care
Parents' experiences of living with a child with a long‐term condition
Consultative Care Coordination Through the Medical Home for CSHCN
Meeting the Needs of Children with Medical Complexity Using a Telehealth Advanced Practice Registered Nurse Care Coordination Model
Naturalistic inquiry
Validity by Committee
Three Approaches to Qualitative Content Analysis
Impact of caring for children with medical complexity on parents' employment and time
| Unique citing works | 8 |
|---|---|
| Citations per year | 1.14 |
| Citation span | 2019 - 2026 (8) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 7 |