From the Child’s Word to Clinical Intervention
Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care
Bibliographic Data
| ID | 15715141 |
|---|---|
| Authors | Katharine E Brock (0000-0001-6125-3077, Emory University), Joanne Wolfe (0000-0002-4406-7413, Boston Children's Hospital), Christina Ullrich (0000-0002-5265-6621, Boston Children's Hospital, corresponding author) |
| Year | 2018 |
| Volume | 5 |
| Issue | 4 |
| Pages | 45-45 |
| Publication date | 2018-03-28 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Children (JOURNAL) |
| Journal identifiers | ISSN: 2227-9067 • E-ISSN: 2227-9067 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/children5040045 |
| PMID | 29597333 |
| OpenAlex | W2794484268 |
| Language | EN |
| Citations received | 5 |
| References cited | 90 |
Despite vast improvements in disease-based treatments, many children live with life-threatening disorders that cause distressing symptoms. These symptoms can be difficult to comprehensively assess and manage. Yet, frequent and accurate symptom reporting and expert treatment is critical to preserving a patient's physical, psychological, emotional, social, and existential heath. We describe emerging methods of symptom and health-related quality-of-life (HRQOL) assessment through patient-reported outcomes (PROs) tools now used in clinical practice and novel research studies. Computer-based and mobile apps can facilitate assessment of symptoms and HRQOL. These technologies can be used alone or combined with therapeutic strategies to improve symptoms and coping skills. We review technological advancements, including mobile apps and toys, that allow improved symptom reporting and management. Lastly, we explore the value of a pediatric palliative care interdisciplinary team and their role in assessing and managing distressing symptoms and minimizing suffering in both the child and family. These methods and tools highlight the way that novel, new, and innovative approaches to symptom assessment and management are changing the way that pediatrics and pediatric palliative care will be practiced in the future
Coping (psychology · Distress · Distressing · Health care · Intervention (counseling · Palliative care · Quality of life (healthcare · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology
Therapeutic Toy in Primary Care
Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care
Vulnerabilidades vivenciadas por familiares/ cuidadores de crianças com condição crônica
Vulnerabilities experienced by family members/caregivers of children with chronic conditions
Evidence for Impact
Measuring Quality of Life in Routine Oncology Practice Improves Communication and Patient Well-Being
Can parents rate their child's health-related quality of life? Results of a systematic review
Health-Related Quality-of-Life Assessments and Patient-Physician Communication
Trending Longitudinal Agreement between Parent and Child Perceptions of Quality of Life for Pediatric Palliative Care Patients
Linkage between the PROMIS® pediatric and adult emotional distress measures
The validation of a computer-adaptive test (CAT) for assessing health-related quality of life in children and adolescents in a clinical sample
A new computerized adaptive test advancing the measurement of health-related quality of life (HRQoL) in children
Assessing responsiveness over time of the PROMIS® pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease
Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey
Implementation of the Kids-CAT in clinical settings
Influence of proxy respondents and mode of administration on health status assessment following central nervous system tumours in childhood
Exploration of oncologists’ attitudes toward and perceived value of patient-reported outcomes
Presenting comparative study PRO results to clinicians and researchers
| Citations per year | 1 |
|---|---|
| Citation span | 2021 - 2025 (5) |
| Highly cited | No |