Priorities of the Pediatric Spinal Cord Injury Population

An International Study on Patient-Reported Outcome Measures

Bibliographic Data

ID15715567
AuthorsMarta Ríos‐León (0000-0001-9110-139X, Servicio de Salud de Castilla La Mancha, corresponding author), Bashak Onal (International Spinal Cord Society Paediatric Special Interest Group (ISCoS PaedsSIG), Aylesbury HP21 8AL, UK), Juan Carlos Arango‐Lasprilla (0000-0002-7184-8311, Ikerbasque), Marika Augutis (0000-0002-9711-1756, Karolinska Institutet), Allison Graham (Buckinghamshire Healthcare NHS Trust), Erin Hayes Kelly (American Academy of Pediatrics), Antonis Kontaxakis (0000-0002-7076-890X, 401 General Military Hospital of Athens), Elisa López‐Dolado (0000-0002-3358-727X, Servicio de Salud de Castilla La Mancha), Elisa López-Dolado (International Spinal Cord Society Paediatric Special Interest Group (ISCoS PaedsSIG), Aylesbury HP21 8AL, UK), Anke Scheel‐Sailer (0000-0003-3820-6664, University of Lucerne), Svetlana Valiullina (Research Institute of Emergency Childrens Surgery and Traumatology), Julian Taylor (0000-0003-2553-2348, University of Oxford), PEPSCI Collaboration PEPSCI Collaboration
Year2024
Volume11
Issue12
Pages1415-1415
Publication date2024-11-23
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueChildren (JOURNAL)
Journal identifiersISSN: 2227-9067 • E-ISSN: 2227-9067
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/children11121415
PMID39767844
OpenAlexW4404701427
LanguageEN
References cited29

Adolescents/young adults highlighted health domain priorities compared with their P&C, who equally considered L&H domains. Life domains, which were previously unaddressed, were highlighted by P&C, including "adulthood expectations" and "parenthood expectations". This survey will promote the involvement of stakeholders for comprehensive rehabilitation management for this population

Bowel function · Environmental health · Foot (prosody · International Classification of Functioning, Disability and Health · Physical medicine and rehabilitation · Physical therapy · Population · Psychiatry · Spinal cord · Spinal cord injury · Cardiac Arrest and Resuscitation · Injury Epidemiology and Prevention · Medicine · Spinal Cord Injury Research · Gerontology · Rehabilitation · Surgery

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