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I Wish No Child Died Like This”

Analyzing Responses from Parents of Babies Who Died of Complex Congenital Heart Disease in a Pediatric Intensive Care Unit

Bibliographic Data

ID15717676
AuthorsFrancesca Benedetti (0000-0001-8720-090X, University of Padua), Viviana Verzeletti (Polistudium SRL, 20121 Milan, Italy), Simonetta Papa (Polistudium SRL, 20121 Milan, Italy), Luca Giacomelli (0000-0002-3600-5941, Polistudium SRL, 20121 Milan, Italy, corresponding author), Caterina Agosto (0000-0003-0584-8871, University of Padua)
Year2025
Volume12
Issue2
Pages209-209
Publication date2025-02-10
Open AccessYes
TypeARTICLE
VenueChildren (JOURNAL)
Journal identifiersISSN: 2227-9067 • E-ISSN: 2227-9067
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/children12020209
PMID40003311
OpenAlexW4407364039
LanguageEN
References cited16

Bereaved parents' experiences underscore the need for improved communication strategies, greater parental involvement in care, and enhanced bereavement support. Integrating structured decision-making pathways early in the care trajectory may help mitigate parental distress and improve the quality of EoL experiences for children with CCHD

Disease · Heart disease · Intensive care medicine · Intensive care unit · Pediatric intensive care unit · Wish · Childhood Cancer Survivors' Quality of Life · Congenital Diaphragmatic Hernia Studies · Infant Development and Preterm Care · Medicine · Internal Medicine · Pediatrics

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