Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Loss of Continuity of Care in Pediatric Neurology Services during Covid-19 Lockdown

An Additional Stressor for Parents

Bibliographic Data

ID15718885
AuthorsSerena Cesario (0000-0001-8172-4657, Sapienza University of Rome), Consuelo Basile (0000-0001-9364-6270, Sapienza University of Rome), Matteo Trevisan (0000-0003-1897-7701, University of Trieste), Federica Gigliotti (0000-0002-9240-3418, Sapienza University of Rome), Filippo Manti (0000-0002-2012-8410, Sapienza University of Rome), Rita Maria Esposito (Fondazione Santa Lucia), Giuseppe Abbracciavento (0000-0002-5955-269X, IRCCS Materno Infantile Burlo Garofolo), Mario Mastrangelo (0000-0001-7664-5807, Sapienza University of Rome, corresponding author)
Year2022
Volume9
Issue6
Pages867-867
Publication date2022-06-10
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueChildren (JOURNAL)
Journal identifiersISSN: 2227-9067 • E-ISSN: 2227-9067
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/children9060867
PMID35740804
OpenAlexW4281887785
LanguageEN
References cited12

Background . This study aimed to investigate the consequence of the COVID 19-related lockdown on the well-being of children with neurological and neurodevelopmental disorders and the repercussion on parental stress during the period 9 March 2020-3 May 2020. Methods . A web-based survey was shared via mail with the parents of children affected by chronic neurologic disorders and neurodevelopmental disorders in the continuity of care in two Italian tertiary centers, independently by the severity of the diseases and the required frequency of controls. For each patient, they were asked to identify a single main caregiver, among the two parents, to fill in the questionnaire. Parental stress was measured via the Perceived Stress Scale (PSS). Statistical analysis was performed with IBM SPSS Statistics version 25. The differences between the clinical groups were performed with one way ANOVA. The dimensional effect of the clinical variables on outcome was evaluated by multiple linear regression analysis. Results . The survey was completed by 250 parents (response rate = 48.9 %). Sars-Cov2 infection was reported in two patients only. A total of 44.2% of the patients had completely interrupted school activities while 70% of parents underwent changes in their job modalities. Health care services were disrupted in 77% of patients. Higher PSS scores were detected in the parents of children with neurodevelopmental disorders ( p = 0.035). Conclusions . The loss of continuity of care during the lockdown must be considered as a risk factor for parents caring for children with chronic neurologic diseases and neurodevelopmental disorders in further phases of the current pandemic

Analysis of variance · Continuity of care · Coronavirus disease 2019 (COVID-19 · Disease · Health care · Psychiatry · Stressor · Clinical Psychology · COVID-19 and Mental Health · Family and Patient Care in Intensive Care Units · Infant Development and Preterm Care · Medicine · Internal Medicine · Neurology · Pediatrics

  • Parents' Stress and Children's Psychological Problems in Families Facing the Covid-19 Outbreak in Italy

    Open Access•Maria Spinelli, Francesca Lionetti et al.•Frontiers in Psychology•2020

  • Posttraumatic Stress Disorder in Parents and Youth After Health-Related Disasters

    Open Access•Ginny Sprang, Miriam Silman•Disaster Medicine and Public…•2013

  • The Impact of Parenting Stress

    Open Access•Stephanie A Hayes, Shelley L Watson•Journal of Autism and Developmental…•2013

  • Mitigate the effects of home confinement on children during the Covid-19 outbreak

    Open Access•Guanghai Wang, Yunting Zhang et al.•The Lancet•2020

  • The psychological impact of quarantine and how to reduce it

    Open Access•Samantha K Brooks, Rebecca K Webster et al.•The Lancet•2020

  • High Levels of Stress Due to the Sars-CoV-2 Pandemic among Parents of Children with and without Chronic Conditions across the USA

    Open Access•Miranda A L van Tilburg, Emily Edlynn et al.•Children•2020

Citation velocityhistorical
Highly citedNo

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae