We Absolutely Had the Impression That It Was Our Decision”—A Qualitative Study with Parents of Critically Ill Infants Who Participated in End-of-Life Decision Making

Bibliographic Data

ID15719301
AuthorsMaria Florentine Beyer (0000-0001-5425-3562, LMU Klinikum), Katja Kuehlmeyer (0000-0003-2839-8850, Ludwig-Maximilians-Universität München), Pezi Mang (0000-0003-2623-9143, LMU Klinikum), Andreas W Flemmer (0000-0002-4601-0314, LMU Klinikum), Monika Führer (0000-0002-2677-2303, LMU Klinikum), Georg Marckmann (0000-0002-6898-9500, Ludwig-Maximilians-Universität München), Mirjam de Vos (Emma Kinderziekenhuis), Esther Schouten (0000-0002-9347-8155, LMU Klinikum, corresponding author)
Year2022
Volume10
Issue1
Pages46-46
Publication date2022-12-26
Open AccessYes
TypeARTICLE
VenueChildren (JOURNAL)
Journal identifiersISSN: 2227-9067 • E-ISSN: 2227-9067
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/children10010046
PMID36670597
OpenAlexW4313247120
LanguageEN
Citations received1
References cited38

SDM is apparently not a one-size-fits-all approach. Instead, neonatologists and parents have to adapt the decision-making process to the parents' individual needs and preferences for autonomy and protection. Therefore, SDM should not be prescribed as a uniform standard in medico-ethical guidelines, but rather as a flexible guidance for DM for critically ill patients in neonatology

German · Medical education · Neonatal intensive care unit · Perception · Preference · Psychiatry · Qualitative research · Variety (cybernetics · Ethics and Legal Issues in Pediatric Healthcare · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology

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