Health-Related Quality of Life Assessments by Children and Adolescents with Sickle Cell Disease and Their Parents in Portugal
Bibliographic Data
| ID | 15719829 |
|---|---|
| Authors | Clara Abadesso (Hospital Prof. Dr. Fernando Fonseca, corresponding author), Susana Pacheco (0000-0002-5503-8845, Hospital Prof. Dr. Fernando Fonseca, EPE—Amadora, 2720-276 Amadora, Portugal), Susana Rebelo Pacheco (Hospital Prof. Dr. Fernando Fonseca), Maria Do Céu Machado (0000-0003-2927-5174, University of Lisbon), Maria Céu Machado (University of Lisbon), G Allen Finley (0000-0003-4579-7749, Dalhousie University) |
| Year | 2022 |
| Volume | 9 |
| Issue | 2 |
| Pages | 283-283 |
| Publication date | 2022-02-18 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Children (JOURNAL) |
| Journal identifiers | ISSN: 2227-9067 • E-ISSN: 2227-9067 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/children9020283 |
| PMID | 35205003 |
| OpenAlex | W4212815130 |
| Language | EN |
| References cited | 31 |
SCD significantly affects children's HRQL. Parents can provide a good proxy report, although both evaluations are beneficial. Disease status, like number of hospitalizations and frequency of pain, influences HRQL. Interventions in SCD should consider improvements in HRQL as an important outcome
Disease · Ethnic group · Population · Psychiatry · Psychosocial · Quality of life (healthcare · Clinical Psychology · Hemoglobinopathies and Related Disorders · Iron Metabolism and Disorders · Medicine · Prenatal Screening and Diagnostics · Internal Medicine · Pediatrics
| Citation velocity | historical |
|---|---|
| Highly cited | No |