Who gets to be born? The anticipatory governance of pre-implantation genetic diagnosis technology in the United Kingdom from 1978–2001

Bibliographic Data

ID15735916
AuthorsShannon N Conley (0000-0002-5919-4706, James Madison University, corresponding author)
Year2020
Volume7
Issue3
Pages507-527
Publication date2020-08-06
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Responsible Innovation (JOURNAL)
Journal identifiersISSN: 2329-9037 • E-ISSN: 2329-9460
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/23299460.2020.1802544
OpenAlexW3047804796
LanguageEN
Citations received4
References cited29

This paper focuses on explicating and understanding important State and societally-wide capacities of the nation-state to govern emerging technologies. It examines the governance around pre-implantation genetic diagnosis (PGD) from 1978-2001 in the United Kingdom. When analyzed as a whole, the informal and formal mechanisms in British society suggest a latent form of proto-anticipatory governance around PGD technology, and that there are important and understudied linkages between anticipatory governance (AG) and Responsible Innovation (RI) that need to be explored. Additionally, I contend that an overlooked element of anticipatory governance, ‘ensembelization,' should be considered the fourth capacity of anticipatory governance, just as ‘responsiveness’ is the fourth dimension of RI. The ongoing case of PGD governance, and more recently, gene editing governance, will perhaps be one of the most challenging, provocative, and important places for development and deployment of RI and AG capacities

Biology · Corporate governance · Economics · Genetic engineering · Management · Political science · Biomedical Ethics and Regulation · CRISPR and Genetic Engineering · Innovation Policy and RD · Genetics

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