Building a Progressive-Situational Model of Post-Diagnosis Information Seeking for Parents of Individuals With Down Syndrome
Bibliographic Data
| ID | 15736613 |
|---|---|
| Authors | Amelia N Gibson (0000-0003-3584-1259, University of North Carolina at Chapel Hill, corresponding author) |
| Year | 2016 |
| Volume | 3 |
| Pages | 2333393616680967-2333393616680967 |
| Publication date | 2016-01-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Global Qualitative Nursing Research (JOURNAL) |
| Journal identifiers | ISSN: 2333-3936 • E-ISSN: 2333-3936 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/2333393616680967 |
| PMID | 28462351 |
| OpenAlex | W2559602750 |
| Language | EN |
| Citations received | 1 |
| References cited | 48 |
This grounded theory study used in-depth, semi-structured interview to examine the information-seeking behaviors of 35 parents of children with Down syndrome. Emergent themes include a progressive pattern of behavior including information overload and avoidance, passive attention, and active information seeking; varying preferences between tacit and explicit information at different stages; and selection of information channels and sources that varied based on personal and situational constraints. Based on the findings, the author proposes a progressive model of health information seeking and a framework for using this model to collect data in practice. The author also discusses the practical and theoretical implications of a responsive, progressive approach to understanding parents' health information-seeking behavior
Developmental psychology · Grounded theory · Information needs · Information overload · Information retrieval · Information seeking · Information seeking behavior · Knowledge management · Qualitative research · Selection (genetic algorithm · Situational ethics · Sociology · World Wide Web · Applied Psychology · Childhood Cancer Survivors' Quality of Life · Computer Science · Family and Disability Support Research · Health Literacy and Information Accessibility · Psychology · Social Psychology · Artificial Intelligence
Developing a grounded theory approach
How does communication heal? Pathways linking clinician–patient communication to health outcomes
Health Behavior Theory and cumulative knowledge regarding health behaviors
Shared Decision Making — The Pinnacle of Patient-Centered Care
Information behaviour
Health literacy as a public health goal
The Emergence and Development of Life Course Theory
Parent's information seeking in acute childhood illness
Health Information—Seeking Behavior
Hearing Bad News
Mothers' voices
A Comprehensive Model of Information Seeking
The Life Course as Developmental Theory
Qualitative Analysis for Social Scientists
Grounded theory research
| Citations per year | 0.2 |
|---|---|
| Citation span | 2021 - 2021 (1) |
| Highly cited | No |