Tensions in Maternal Care for Children, Youth, and Adults With Autism Spectrum Disorder
Bibliographic Data
| ID | 15736710 |
|---|---|
| Authors | David Nicholas (0000-0003-4480-322X, University of Calgary, corresponding author), Radha Macculloch (0000-0001-6839-8367, Holland Bloorview Kids Rehabilitation Hospital), Wendy Roberts (Autism Canada), Lonnie Zwaigenbaum (0000-0001-9607-0799, University of Alberta), Patricia Mckeever (University of Toronto) |
| Year | 2020 |
| Volume | 7 |
| Pages | 2333393620907588-2333393620907588 |
| Publication date | 2020-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Global Qualitative Nursing Research (JOURNAL) |
| Journal identifiers | ISSN: 2333-3936 • E-ISSN: 2333-3936 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/2333393620907588 |
| PMID | 32128352 |
| OpenAlex | W3008711816 |
| Language | EN |
| Citations received | 5 |
| References cited | 28 |
This study explored the experiences of mothers caring for an individual with autism spectrum disorder (ASD) ranging from 5 to 25 years of age, and examined pervasive tensions in caregiving. Guided by ethnographic methods, a retrospective cross-sectional study was conducted. Interviews with 85 mothers were analyzed inductively. Prevalent tensions in maternal caregiving were identified: (a) difficulties obtaining, yet resistance to, an ASD diagnosis; (b) identified giftedness of the child versus notions of deficit imposed by others; (c) disability-related behaviors erroneously interpreted as 'poor parenting'; (d) contradictory considerations in diagnosis disclosure; (e) the invisibility yet pervasiveness of ASD; (f) extensive need for, yet the lack of, accessible services; (g) ASD-related care demands versus other pressing responsibilities; (h) arguments for inclusive versus exclusive services; and (i) aims of nurturing independence versus managing safety risk. Tensions were heightened by insufficient supports relative to need. Implications and recommendations for practice and policy are offered
Autism · Autism spectrum disorder · Developmental psychology · Invisibility · Psychiatry · Resistance (ecology · Autism Spectrum Disorder Research · Clinical Psychology · Family and Disability Support Research · Infant Development and Preterm Care · Psychology
Factors associated with the adjustment of typically developing siblings from single-incidence, multiple-incidence and non-autism spectrum disorders families
Mediating Effects of Social Support on Caregiver Burden and Quality of Life for Compound and Noncompound Caregivers
Shouldering the burden
The Attachment Process of the Mothers of Children with Autism Spectrum Disorders in the Pre-School Years
Pragmatic parenting
The Long Interview
Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome
How Mothers Talk About Placement of Their Child With Autism Outside the Home
Live It to Understand It
Parents' Experiences of Caring for a Child With Autism Spectrum Disorder
From Refrigerator Mothers to Warrior-Heroes
Mothers Who Care
| Unique citing works | 5 |
|---|---|
| Citations per year | 1 |
| Citation span | 2021 - 2025 (5) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 5 |